Thread #5 for those living with incurable cancer, supporting each other and remembering the lovely friends we've lost along the way

[SewingBees]

New thread, an open invite to anyone living with Stage 4 cancer to share your worries and joys and just generally chit chat about whatever you're going through today x

Forgot to say, my gynae surgeon at the Christie, she has a super LONG name (!) was the only one who ever asked how I was. As in how are YOU.. with a pause and no hurry to yap medical stuff me. She’s a legend!

Are you eating? 🥰

I completely agree! It makes all the difference being asked how you are and they actually want to know the answer!

Yes comments because I have been asking my patients how they really are and actually giving a shit about them instead of just telling them the plan and then ending the clinic. I really do care about my patients and I want to help them, it means I overrun a bit (a lot) but I still speak to every patient on my list it’s just not perhaps as quick as my colleagues would prefer. One of my colleagues told me to just tell them what surgery they’ll be having and if they have any questions to look on The macmillan website

Look on the MacMillan website??? Well there’s no humanity there! Patients want to ASK questions to a real person FFS 🤦‍♀️

Yeah it was absolutely shocking! He’s a tit in general though. What’re Everyones plan for the weekend ? We’ve been invited to one of our best friends 40th and he’s hired out the local bar and paid for a keg of beer so should be a fun night!!

@sellotapechicken that should be fun (I nearly typed gin instead of fun 🙈).

I've just been out for a few cocktails with my best friend, both had a good moan, picked up a few bits & now home with a brew. Treated myself to some new pj's in Primark - didn't really need them but do go through them faster with the night sweats & it is forecasting hot for the next week.

Need to set up a new savings account off mine - she wants a friend group holiday for her 50th in 2 years, so that's my goal for now. She was very frank about someone (not just me) might not be here, but that's what she wants to do, so that's what we'll plan for!

I'm going to paint for an hour or so now, then think about reheating last night's Chinese & getting an early shower before I flop. Might hunt Vinted for a grey cardi later, and a red one. Grey for a gig I am yet to convince Dd2 she wants to go to, red for VE Day celebrations at work.

@sellotapechicken enjoy your night! I’m staying firmly in. Bad tummy
and exhausted from chemo on Wednesday. Not even the energy to take my mouldy raspberries back to Morrisons!

@Whatevershallidowithmylife are you okay? X

@lucysmam i just got some their nibs from tk maxx everyone goes on about them on here I don’t know why they don’t go online at tk maxx. There’s a good competition I entered for Sam Fender in the gardens in Edinburgh I will give you them if I win.

i have that growling pain in my stomach it’s constant really puts me off eating. I have Indian from last night so I might manage abit of that.

its been a beautiful day here.

Aw @EachandEveryone that's really kind! Sam Fender's on our "to see" list. Still kicking ourselves for not going to an exceptionally local, working men's club, gig he played when he started his career!

@sellotapechicken - I’m away in Pitlochry with friends for the weekend- lovely place if anyone is looking for a break.
Away out to dinner soon. Will post more later in week xx

I’m just trying for glasto resale tickets for my friends. Good to take my mind of other stuff and also to clear the constipation 😀 fingers crossed they are the last two of our group.

I need you all to channel "dd2 wants to go to Inhaler's Manchester gig in May half term" vibes for me 🤣. Like a div, dd1 has bought tickets & dd2 didn't actually say she wanted to go 🙄.

Here’s one for you @EachandEveryone a member has posted in the AIBU section of MN.
“ Is 7k a month after housing costs, enough to live on in London?”

7K ?? WTAF?? Assuming no private school fees or paying into pension pot extraordinaire!! 🤣

God that’s shocking it must be a joke? I don’t get paid anymore. After 28 years nhs service I opted to retire and return so I got the lump sum. I don’t know if I will ever beable to go back to work but I’m hoping so. My lump sum since cancer has halved the one time I had a decent amount in bank and I’m gutted but I’m literally taking a grand out a month to pay the bills. I know that’s what it’s there for but it hurts. I’m so lucky to have just got the full pip for ten years because I don’t know what I would do. I’m just not one of those people that could hide my money to get UC knowing my luck I’d end up in jail😀. What I would give for 7 grand a month! If I didn’t have this open wound I swear I’d be back at work by now. Everything is just so unfair for us all.

I think the poster must be thick! If she has that much money left over each month, one assumes she’s on a 6 figure salary, but she can’t work out what she needs to live on?

Yes, unfair alright. I’d be working now too, if this bd sarcoma hadn’t grown. I was ticking along nicely, got used to breast cancer meds, had my hair, then boom… everything gone pear shaped!!

That is absolutely insane!!!

I’m in hospital stood up had a massive bleed still bleeding out of that wound I think is a bein

Are you ok?

@EachandEveryone are you ok? Have they managed to stop it?

Oh crikey @EachandEveryone have they stopped the bleed?

Yes it’s such an awkward position they suspect it’s the cancer as it’s wrapped around my femoral vein does anyone know what they would do for that? I’m praying they won’t stop the immunotherapy. My hb is good.

im so thirsty they are so slow to bring the water

@EachandEveryone oh dear that’s no good, hope they get their water bottles there soon

I am in the hospice and looking at 5 weeks maximum. Feeling fine really, I have no life if i stay yes, for my loved ones it would be better if i was there i’ll and it pain it seems- nice! I’ve got the syringes driver which is in think for the good stuff. Time for a nap’

I’m sorry @EachandEveryone and @Whatevershallidowithmylife . Thinking of you both xxx

Love to you both @EachandEveryone and @Whatevershallidowithmylife I hope you are comfortable xx

Too tired to mention others.. fatigue off the scale, mouth like I’ve swallowed nails and tummy that is VERY up
and down. Fucking hell, is this life now? 🙁