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Original poster

dh has got hospital appointmentt toorrow.

34 replies

misdee · 01/12/2004 21:18

6 (well actually 9months this time) month check up tomorrow. kinda know it wont be good news. have a feeling he will be sent for assessment for heart transplant soon. as long as we get some answers soon.

OP posts:
Donbean · 01/12/2004 21:36

good luck.

Aero · 01/12/2004 21:37

Yes, good luck misdee.

cardigan · 01/12/2004 21:39

good luck with this xxx

Santasluckylittlehelper · 01/12/2004 21:40

Good luck misdee. Hope you get the answers you need from the appointment. Hugs to you both.

blossomgoodwill · 01/12/2004 21:40

Sending lots of positive vibes your way misdee. Wishing you lots of luckxxx

essbee · 01/12/2004 21:40

Message withdrawn

Original poster
misdee · 01/12/2004 21:44

thanks essbee. i am still clinging to the hope they will be able to hold off another 5years, but its doubtful. he really isnt doing too well. Tho if they adjust his medication he may feel some improvement. They were hoping that if this was viral DCM he would've have had some improvement by ow, but last echo last year showed slight deterioation(spelling???) which isnt too good.

OP posts:
Original poster
misdee · 02/12/2004 10:54

well am off soon to take dd1 to nursery, then will have to drop dd2 off at mieows, and head to the hospital this afetrnoon. really not looking forward to this. apart from the fact the clinic is miles away from the car park, so may have to steal a wheelchair for him.

fingers crossed it goes ok today.

OP posts:
KBear · 02/12/2004 11:08

Thinking of you....

SpringCrimboTurkey · 02/12/2004 11:20

Thinking of you Misdee - Have got my fingers crossed for you and DP x

spacedonkey · 02/12/2004 11:24

thinking of you too x

Kaysleighbells · 02/12/2004 11:25

Hope it goes ok. Thinking of you X

coppertop · 02/12/2004 11:27

Hope it goes well today, misdee. xxx

Pidge · 02/12/2004 11:29

Fingers crossed here too.

noddy5 · 02/12/2004 11:50

I know it is terrifyimg but the transplant earlier rather than later will transform your lives.I waited too long for my kidney and my heart and other things deteriorated whilst on dialysisAnother 5yrs could affect him in other areas I know it is scarey but just think of life afterwards it is great

noddy5 · 02/12/2004 11:51

good luck today whatever you all decide keep us posted

noddy5 · 02/12/2004 11:51

good luck today whatever you all decide keep us posted

TinselTamum · 02/12/2004 11:53

Good luck misdee. I agree, maybe if you can bear to it's betterto think of a transplant as a positive move, as it clearly was for essbee's uncle?
xx

survivour · 02/12/2004 12:36

Keeping everything crossed for you both misdee !!!! keep us informed please......

JuniperDropofbrandy · 02/12/2004 13:06

thinking of you all misdee (((((((hugs))))))

fairydust · 02/12/2004 13:08

misdee fingars crossed for you xx

triplets · 02/12/2004 13:46

Thinking of you both too, I have my own recall today and I am a jibbering wreck, and it could be for all sorts of reasons, be strong, I know how hard it can be xxxxxxxx

Original poster
misdee · 02/12/2004 14:07

triplets, think of you this afternoon.

we have got to head to the hospital earlier as thr A1 is having probs due to gas leak. just what we need.

OP posts:
noddy5 · 02/12/2004 18:50

How did yor appointment go today?Hope all is well

Original poster
misdee · 02/12/2004 19:28

well he is being referred to harefield for assessment for a transplant. In some ways its a relief as he hopes that afterwards he wll have somthing more of a life, rather than just exsisting like he is atm. He has another check-up due in 4-6months at local hospital to make sure he 'doesnt slip thro the net' but we should hear soon from harefield.

As he specialisty said, they have held off as long as possible but now they cant drag it out any longer and transplant seems to be the way to go. She has always laid it out straight to us, even when he was first dx, in a+e she told us that transplant was a possibility.

OP posts: