dh has got hospital appointmentt toorrow.

[misdee]

6 (well actually 9months this time) month check up tomorrow. kinda know it wont be good news. have a feeling he will be sent for assessment for heart transplant soon. as long as we get some answers soon.

misdee, you are being so strong. As you know, Harefield is definitely the place to be if you need a transplant. I really hope it all goes well from now on.

I know you are probably terrified but I am so happy for you!Kidney faliure manifests itself like heart failure and liver too The exhaustion and the feeling of having no life is awful My heart is controlled ATM with meds but for how long?A new organ is literally a new life,lots of love to you all and have a lovely xmas I hope he doesn't wait too long.

i am terrified, its a major op, and i hate hospitals. but am trying to be positive, but what do i tell the kids? especially dd1 who asked what the doc said today. she is 4yrs old and nows her dad isnt well but how much do i tell her?

I can completely see why you'd be terrified misdee. I would too, even though it's clearly for the best. I would be inclined to tell your dd if I were you- it's actually quite a simple concept for a child to know that daddy needs a new heart, although I suppose it might get harder if she wants to know where the new heart will come from. I bet she'll be more matter-of-fact about it than you think.
Hugs.

my thoughts are with you & family xxx

Hi misdee - been thinking of you and dh all day.

Glad that you're trying to see the positives in this. I know its not a fix but it's a chance for a better quality of life for your dh. I think all you can do is be as honest as you can with dd without getting too complex. There is probably some info aimed at children having there own transplants which you could use to explain. Maybe the Children's Heart Federation could help? They have a helpline 0808 808 5000. Keep us posted.

thanks sally. feel worse today, just keep thinking its for the best tho. why so close to xmas do we find this out tho? how is your dh doing?

Hi Misdee, don't know what to say really as I know you're very worried. Even knowing this will greatly improve his life won't take away that. ((((((hugs)))))