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Can I have a hand hold

103 replies

user1497873278 · 26/06/2021 18:45

Been in hospital a few days feeling very ill, they don’t know what’s wrong, have been ill for last six weeks, went to my doctor after my husband complained as I was not getting anywhere calling them. She called emergency ambulance, they thought I had sepsis, had bloods X-ray they sent me home, and I have carried on like this,terrible neck shoulder pain head pressure ringing in ears, severe dizziness, no appetite for 6 weeks, temperature, also have problems with feet can’t sit as they go red blue and are painful, originally though feet was down to slipped disc but seems not, feel like everything is connected but I’m getting passed around one says one thing then see someone else, I feel like I have really bad infection, but bloods clear, just raised inflammation, anyone have any reassurance, I’m thinking all sorts, had brain mri that seems ok, chest X-ray, I getting so anxious now as it feels like I can’t remember what it feels like to feel well

OP posts:
NigellaSeed · 26/06/2021 18:58

You are in the best place - hoping they find out what's the issue and then you can start the recovery process

Keep eating, drinking and keep your spirits up!

FlowersFlowers

NigellaSeed · 26/06/2021 18:58

Those were meant to be flowers xx

Bookaholic73 · 26/06/2021 18:59

Sending you a huge hug, what a difficult time.
Do you have friends/ family you can call on to help you emotionally?

Suzi888 · 26/06/2021 19:00

I’m sorry OP that sounds horrendous. Sad

user1497873278 · 26/06/2021 19:08

Thank you all so much, it really helps, it’s hard when you have no answers to stay positive, and every time they check something blood pressure heart rate, it’s to fast, or to low doesn’t help when your already anxious thank you all, so lovely of you to reply so quickly

OP posts:
Suzi888 · 26/06/2021 19:20

Glad you are being seen, hope you feel better soon.
Some of us will probably be around in the middle of the night if you can’t sleep - take care. Flowers

user1497873278 · 26/06/2021 21:28

Suzi888 thank you so very much that’s so kind

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Borntobeamum · 26/06/2021 22:33

You must be feeling anxious and that’s totally understandable.
However you’re in the best place and I hope you get answers soon x x

user1497873278 · 26/06/2021 22:44

Thank you borntobeamum, Bookaholic73 thank you yes I’m lucky I have my husband and children, NigellaSeed, thanks for the flowers, I’m drinking but have no appetite have lost a stone and a half in 6 weeks, have my children worrying that I might get covid as I have been to ill to go for my vaccines bless them

OP posts:
Borntobeamum · 29/06/2021 13:28

How are you doing? X

user1497873278 · 29/06/2021 15:54

Borntobeamum, I have had a rain mri which has picked up something so they have sent it to kings London for their opinion, they dont know if it’s relevant to how ill i am waiting for a CT scan, have had loads of bloods, they are saying systemic as I have so much going on they just don’t know what, I have had my feet turning red then purple since xmas it is impossible to sit down as they throb and my toes swell I can’t help feel this is a major part of the problem it’s like all my blood rushes to my feet and then can’t easily get back up, feel breathless dizzy, and they s as really concerned about weight loss so, I think I’m a complicated one, 😌 thank you so much for asking the days are very long

OP posts:
Floralnomad · 29/06/2021 15:59

Have they checked your adrenal function as some of your symptoms do fit ( weight loss , dizziness , no appetite ) . Hope you get some answers and feel better soon . 💐

user1497873278 · 29/06/2021 16:32

Have no idea, they have done days of blood tests I’m hoping that they are covering everything possible but when I ask they say a wide range, came today with enormous size thingys, sorry don’t know what they are called, won’t have much left at this rate

OP posts:
user1497873278 · 29/06/2021 16:33

Thank you will mention it

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Floralnomad · 29/06/2021 16:48

Nobody ever tests for adrenal function , seriously I spent a week in hospital when I was ill ( eventually diagnosed with Addison’s disease) and actually told them what I had and they still didn’t test for it !

veeeeh · 29/06/2021 17:47

Ask if they are checking B12 deficiency. I am sure they are. Best of luck.

user1497873278 · 30/06/2021 09:15

Thank you ou all I’m waiting for ct scan, just scared feeling this ill and they don’t know

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Floralnomad · 30/06/2021 20:55

How are you feeling this evening @user1497873278 , have they found out what the problem is yet ?

user1497873278 · 30/06/2021 21:34

Have had my tests sent to kings mris and bloods, have had some bloods back saying vascolitis don’t know if that’s going to be as well as other things

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Floralnomad · 30/06/2021 21:55

At least you have started to get somewhere and can now start some treatment . Best wishes 💐

Roonerspismed · 30/06/2021 21:57

Lots of love to you. How stressful

Just a thought - make sure you mention if recently have had the covid vaccine. My friend had some odd symptoms

WorriedMillie · 30/06/2021 22:01

Ah, bless you, I was just about to suggest vasculitis. I hope you get a firm diagnosis and treatment plan soon Flowers

pickingdaisies · 30/06/2021 22:03

Can't help, but sending love Daffodil

user1497873278 · 01/07/2021 07:29

Thank you everyone I’m really hoping when they have all of the results they will start me on some treatment, as 7 weeks feeling this bad

OP posts:
Floralnomad · 01/07/2021 15:26

Have they started some treatment yet @user1497873278 , hope you are feeling better soon

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