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DS has brain tumour - update

381 replies

Clarinet60 · 14/09/2005 11:01

We went to Alder Hey yesterday and they were very efficient in terms of ordering a second scan for this Friday, etc, but we are back to square one in terms of whether/when a biopsy will be done, because the person we saw wants to start all over again and let his own team decide. This is worrying, because the oncologist at Manchester said ds needs a biopsy - I just hope the new team agrees. Also, we were wrapped over the knuckles for changing teams because they are all good friends together. I lost a lot of sleep last night fuming about the injustice of that, because the Manchester team lost letters, ignored requests for blood test results and generally had a 'some time any time' attitude that didn't put ds's welfare first, etc etc. Mustn't rant, this is supposed to be an update! So, scan on Friday (to see if it's grown) after that, who knows?

OP posts:
blueteddy · 19/09/2005 22:27

Thinking of you & your ds, Droile.
xxx

Milge · 19/09/2005 22:27

Good luck this week.

Clarinet60 · 19/09/2005 23:01

Thanks everyone.
Off to bed now, leaving early in the morning, so will post again when we come out.
Thanks for all your support, xxxxxxxx

OP posts:
hoxtonchick · 19/09/2005 23:04

i'll be thinking of you all this week droile. xx

potty1 · 21/09/2005 08:55

Droile - thinking of you today. Praying that you'll soon have good news about your little boy.

X

PollyLogos · 21/09/2005 09:03

Droile I do hope that everything goes well for ds today. My thoughts are also with you and your dh during these stressful hours.

Wishing a strong and speedy recovery to ds.

pindy · 21/09/2005 09:04

Thinking of you - good luck and I hope everything goes really well.

{{{hugs}}}

ggglimpopo · 21/09/2005 09:15

Message withdrawn

Hausfrau · 21/09/2005 09:16

This reply has been deleted

Message withdrawn at poster's request.

Nome · 21/09/2005 09:17

Thinking of you and sending you all best wishes for today.

macwoozy · 21/09/2005 09:20

You are in my thoughts today, I hope all goes well.

Marina · 21/09/2005 09:33

Praying for you all today, Droile, and willing the best of outcomes. I hope knowing how much you are cared for by us all on here helps just a little on this most important of days. XXX

Mirage · 21/09/2005 09:35

Thinking of you & your family today Droile.

dejags · 21/09/2005 09:36

Thinking of you all Droile.

All the very best
love
dejags
x

Cam · 21/09/2005 13:05

Wishing you and your ds the best, Droile xxxx

soapbox · 21/09/2005 13:06

Me too - wishing you all a good outcome from today!

handlemecarefully · 21/09/2005 13:06

Also sending good vibes your way....

princesspeahead · 21/09/2005 13:11

oh droile, best of luck for your and your little boy xx

marthamoo · 21/09/2005 13:16

Thinking of you today xx

lou33 · 21/09/2005 16:13

Good luck Droile and co x

binkie · 22/09/2005 11:02

Droile, I have been thinking of you and your ds.
Much love.

ScummyMummy · 22/09/2005 11:03

Hope everything has gone well for your baby, droile. Thought of you a lot yesterday.

bundle · 22/09/2005 11:07

droile, thinking of you lots, x

mymama · 26/09/2005 04:41

have been thinking of you droile. Any news??

potty1 · 27/09/2005 21:59

Droile - just to let you know that you are still very much in my thoughts.

Hope things are OK.