Immune /natural killer cell treatment when ttc or pregnant (aka the 18th pred thread!)

[Hula2]

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

Will keep all fingers and toes crossed for you Trying!!

Who are you seeing again Waiting? I wonder why they do that? DrS is just 25mg up to 10dpo. When're you due to test?

Hi everyone else

I'm at create, OTD is 11 March but I'm planning on testing early with frer once hcg trigger out of system (it's stubborn!)

It's the 9th not 11th....... Think the progesterone is making my mind a bit fuzzy!!

Eurghh I've woken up feeling like absolute hell! I NEVER get colds and now my throat fees like I've swallowed razor blades, my head feels like it's been run over and I can hardly breathe through my nose! And to top it off I'm now worrying that's a bad sign

Oh no seeking sorry you feel shit! It's prob a good sign that your immune system is weakened due to the pregnancy. When do you see dr s? X

Today at 12.40! So at least I don't have long to wait to know. One worry after another!

Seeking I've got a sore throat too! Weirdly I also dreamt about u last night?!!! We met in a hotel in Brighton!!!!
Hope ur ok and loads of luck xxxx

Good luck seeking! There's lots going round atm

Haha! How bizarre!! Maybe one day we will all meet up! That would be lovely!
Hopefully the sore throats are just a sign of our immune systems giving in!!
Thanks ladies

Ur obv in my thoughts seeking! Looking fwd to an update X

Good luck seeking xxx

Good luck Seeking! Xxx

Hello all, I've not been in here for a bit, just tried to read through and catch up on all that's going on!

Hello to all the new ladies in here, so sorry for all you've been through, this thread is amazing though for support and general letting off steam. It sometimes feels like nobody out there gets it or talks about these things.

Congrats to Snoopy! And to Dttrc and Seeking! Hang in there - one day at a time and small milestones are the way forward. Good luck today Seeking! I had a bad cold early on in my pregnancy and freaked out but was fine, I put it down to my immune system not being what it was and the preds and intralipids working and found solace in that.

I'm still luckily a success story in the making after seeing Dr S and his treatment for high Nk cells. Am 33 weeks pg this week and finally starting to relax a bit but the pregnancy has been tough.
When off the steroids at 12-14wks I got crazy allergic rash, like skin was on fire.
Turns out I was probably allergic to progesterone (and steroids masked the symptoms as they are what would normally treat the rash - mad!) but at the point i was due to come off progesterone the nhs said I had to be on it as had possibly weak and short cervix (definitely worth being checked for this!).
The rash was unbearable without Antihistimines but couldn't be on those all the time so ended up having the cervical stitch which terrified me after all the miscarriages (even Dr S said it wasn't needed as had had a baby before) but I had it just before christmas and so glad I did.
Came off progesterone and skin improved - and felt the stitch gave me that extra strength to keep bubba in there!
Latest is that I've now got gestational diabetes - trying to control it with yet more drugs. They are going to induce me at 38 and half weeks probably (early April).

And hats what is going on with me - by the way I have progesterone and preds knocking around if anyone nedda them in an emergency, I can post!

Just wanted to let you all know of another positive outcome from Dr S treatment. Just got to get through the next 5 weeks! X

Congrats Lisa chick good to here you re on the home straight after what sounds like a pretty bumpy ride, hope the can keep the GD under control, Sunny had that and had her little boy about 6 wks ago.

Good lucking Seeking, thinking of you hun x

wow Lisachick1, this is quite an inspirational story- thanks for posting as we need all the thumbs up that we can get.
Sounds like a very troubled ride and I can totally empathize with you as to how stressful if must have been.... I am only recently on board with the investigations on NK/autoimmune conditions with Dr S and have only seen him once but already feel very nervous about the prospect of ttc again.
Hope the diabetes can be kept in check easily and without starving you!
The reaction to pg sounds totally crazy though! Have you had any other side effects from the steroids with weight gain/mood swings/insomnia etc? Although it sounds like they did you more good than bad!?!

home run galore, well done you

Wow Lisa you've had rough ride! So glad that you're on the home straight now though! So lovely to hear more and more success stories

Appointment went well. Baby measuring 6+1 hb 126bpm. DrS seemed happy
Next scan is 18th with NHS and 19th with him

Brilliant seeking congrats!! xx

Thanks for sharing Lisa Im sorry its been so stressful for you! I hope you can start to enjoy your pregnancy xx

Yay Seeking ! x

very good news Seekingmiracles!
Are you combining Shehata and NHS for your scans then?
Did he say anything about your cold related to the drugs?

Yay congrats!!! :)

Congrats Seeking :) ! Next stop- 8 weeks scan! Xxx

Congratulations seeking

Yes Anna, I'm having both. Still seeing Dr S every 2 weeks but adding in NHS ones when I can. Thankfully I've got a very supportive EPU local to me!

Hi all. I've been reading through your thread in the hope that the experiences shared here might shed some light on my next move to ttc baby #2.

Congratulations to those who are pregnant and it's inspiring to read that things can work out after recurrent miscarriage.

My situation. I have a 2 year old conceived through IVF in April 2013. I have endometriosis which was why I unsuccessfully ttc for 2 years 3 months prior to IVF.

I think a combination of pregnancy, breastfeeding and diet has cleared the endo, because I have fallen pg twice, only to (missed) miscarry at 8w. I had the ERPC a week ago for a pregnancy dated 11w.

Things are very raw now. The surgeon told me I had just been unlucky and to try again after my next period. I'm unconvinced and wonder if we should use savings meant for house renovations on a consultation with Mr Shehata. Third option is a FET with a 4AB embryo from our 2013 IVF.

I'm so confused right now and am anxious about costings when obviously no guarantees re:any option.

What are people's thoughts about using the frostie, when I can conceive? Should I get pg again and take the NHS investigations if it goes wrong a 3rd time (shudder). Or, give up altogether and be happy with my lot?

I hope you don't mind me posting here for advice? It's pointless discussing with friends IRL as most have conceived naturally and had uncomplicated pregnancies.

Thanks in advance.

Yay seeking, another milestone down! Now you relax and look after yourself, get rid of that cold

lisa so glad to hear you are still on the road to success, sorry it ha been such a traumatic journey. Do you mind if I ask, where you automatically tested for GD? I went through my notes yesterday and realised the midwives haven't even been signing them properly and there's a checklist that no one seems to have followed so I haven't got a whole load of pamphlets etc

lost I'm afraid I don't know much about IVF so I will defer to our resident expert trying, so sorry you find yourself here