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Mass on brain 4 month old baby

937 replies

eastview · 15/11/2022 11:03

I don't even know where to start but I took my daughter (4 months) to the GP as she's done this flickering eye roll ever since she was born and they thought it was linked to reflux as did we but they referred us to a paediatrician just to be sure. They did an mri and eeg which showed seizures but found out yesterday that she has a 2cm mass on her brain. I am absolutely devastated and don't know where to go from here. They haven't given an indication as to what they think it is and we are just waiting to hear from them. All I'm thinking is the worst and I can't stop crying. I've been thinking about how I'm going to kill my self when my daughter dies. I feel hopeless and that I don't have the strength to do this. She is my only child and I tried for over 3 years to have her with miscarriages in between. They thought she was missing her cavum during pregnancy so that was traumatic too. I don't know what to do, I can't believe this is happening to us.

OP posts:
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30
FatEaredFuck · 21/11/2022 16:19

She's a beauty! How did she get on today?

Nottogetapenny · 21/11/2022 16:19

Thinking of you and your beautiful baby daughter. Hope you get, some good news and whatever she has, it has the best possible outcome for her to be well.🌸

WhiteJeans07 · 21/11/2022 16:32

Thinking of you and your lovely girl today OP 💐

PutinSmellsPassItOn · 21/11/2022 16:37

Oh op, I hope you had a more positive day today. What a beautiful, little baby you have. The joy just shines from her. 🌹

Benjispruce4 · 21/11/2022 16:38

What’s beautiful baby. OP I am thinking of you and hoping there is light at the end of the tunnel.

Valhalla17 · 21/11/2022 16:42

Thinking of you OP. Flowers

TiredMama05 · 21/11/2022 16:45

Sending so much love and prayers for you and your gorgeous little girl.

Runover · 21/11/2022 16:47

Hi @eastview my husband is a Neurologist here in the USA so if you have any questions or need clarification on anything DM.

Greycatclub · 21/11/2022 16:50

She’s beautiful, sending all the best wishes and strength in the world

blackpearwhitelilies · 21/11/2022 16:54

What a gorgeous little girl. Such a sweet smile. Thinking of you, OP. I hope all goes well.

Misspacorabanne · 21/11/2022 17:02

She's beautiful! Your in my thoughts today op!

Highfivemum · 21/11/2022 17:04

Have been thinking of you and your little beauty. Sending all good wishes

BorderlineBagpuss · 21/11/2022 17:05

Your little girl is very beautiful, I hope things go well for you.

BorderlineBagpuss · 21/11/2022 17:05

Runover · 21/11/2022 16:47

Hi @eastview my husband is a Neurologist here in the USA so if you have any questions or need clarification on anything DM.

Requoting so you don’t miss this generous and important message

plaide · 21/11/2022 17:09

Runover · 21/11/2022 16:47

Hi @eastview my husband is a Neurologist here in the USA so if you have any questions or need clarification on anything DM.

That is so sweet of you.

lukelovesu · 21/11/2022 17:09

My heart goes out to you. It really does. I’m so sorry you’re going through this and have been feeling so alone. There are lot of people here sending you strength and love. I hope you are given some clarity about what is going on soon xxx

Mirrorcell · 21/11/2022 17:12

She is very beautiful. I hope today went as well as could be. Sending hope and best wishes to you all.

Allschoolsareartschools · 21/11/2022 17:12

Thinking of you & your beautiful daughter x x

Blackmetalmama · 21/11/2022 17:14

She is absolutely adorable. Good luck OP x

Rosesareredvi · 21/11/2022 17:15

Sending best wishes. Regarding the care, if you can get any of the tests done privately to speed up the diagnosis, be able to have answers and ask questions as you need, it would probably be well worth it.

Wingingit11 · 21/11/2022 17:16

What a sweety. Good luck today x

Twospaniels · 21/11/2022 17:16

I hope the news is good today, or at least you get some answers. Your baby is gorgeous.

Tiredmamaaa · 21/11/2022 17:20

Wishing you all the best and I hope it is a positive outcome!! Your little girl is beautiful xx

stopbeeping · 21/11/2022 17:21

Been thinking of you all weekend

All my love
We are here for you xxx your girl is perfect

Pumpkin20222 · 21/11/2022 17:41

Rosesareredvi · 21/11/2022 17:15

Sending best wishes. Regarding the care, if you can get any of the tests done privately to speed up the diagnosis, be able to have answers and ask questions as you need, it would probably be well worth it.

Sending best wishes and online hugs. Just read through your additional posts. Is there a private consultant based at the hospital your daughter has been referred to? When there is a diagnosis, there is likely to be a specialist/centre of excellence somewhere in the world. Hoping the consultant can share the details.