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DS in hospital following haemorrhage

36 replies

purplearmadillo · 23/01/2011 05:42

DS had a post-operative haemorrhage yesterday after having his tonsils and adenoids out on Tuesday. He was re-operated on yesterday evening but his post-op observations show his heart rate is still really high.

I am scared. Does anyone have experience of this with a good outcome. I dont want any bad stories as I have already googled (stupid I know). I am frightened of taking him home and him bleeding again and bleeding to death before we get him back to hospital. He is almost 3.

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ben5 · 23/01/2011 05:43

no experience but hope he gets better soon.

rempy · 23/01/2011 05:50

I feel for you armadillo, it must be so frightening.

His heartrate will be high, he has less red cells going round and round, so he is compensating appropriately. It will settle in the next few hours/days.

He may need a transfusion if his count is very low, I would suggest that is unlikely - we tend to steer away from transfusing unless absolutely necessary.

He may be a bit tired, or tire easily for the next 6-8 weeks whilst he makes more red cells.

I have not heard of an actual case of a second re-bleed with a tonsil, although obviously it is a possiblity, for exactly the same reasons as the first time. But the odds are with you, not against you. It is a rare complication.

I would bet that he will be pretty normal by tomorrow afternoon. Lots of ice-cream all round!

purplearmadillo · 23/01/2011 05:55

Thanks for the replies. It's very lonely being in hospital with him and have been awake most of the night for one reason or another.

Rempy, that is really useful and reassuring re the heart rate. I got the impression it should be back to normal immediately so it helps to hear that isn't the case.

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rempy · 23/01/2011 06:15

There is nowhere more awful than a childrens ward at night, with one of your babies poorly. I can totally empathise. See if you can't get home for an hour today and get a shower/clean clothes/something to eat that hasn't come out of a vending machine. It helps to see some daylight!

thumbdabwitch · 23/01/2011 06:16

Are they checking his blood clotting to rule out any disorders there in terms of the reason for the haemorrhage? Or was it burst stitches-type haemorrhage?

Poor you and poor little boy! Hope he gets better soon and recovers really fast now.

purplearmadillo · 23/01/2011 06:49

Managed to get an hour's sleep.

Rempy, I am torn by how desperately I want a shower but how much I don't want to leave ds. We are 40 minutes from home.

Thumbwitch, one haemorrhage is a common-ish complication so they aren't looking for other issues yet although of course I am worrying about all that kind of stuff.

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doricpatter · 23/01/2011 06:58

Oh poor DS and of course poor you. :( Thinking of you and hope he's on the mend really soon.

blueberryboybaitonSafari · 23/01/2011 07:29

Armadillo - not the same I know but I had a massive post op haemorrhage post tonsillectomy when I was in my 20's. I lost a considerable amount of blood, went back to theatre where the cauterised the bleeding vessels and I was fine no recurrence at all. It may take him a while to get back up to strength but unless there is an underlying issue he should be fine.

Hope he is better soon.

oricella · 23/01/2011 08:15

so sorry for you and DS - I can imagine how scared you must be feeling. On the plus side - he's in the best place and will be looked after well

40 minutes is a big trek home - understand you don't want to do that; does the hospital have parents accomodation that you can get access to? IME, even if you are not staying there, they will give access to showers and the lounge. Do look after yourself and allow yourself to leave your DS for 15 minutes, ask a play assistant to sit with him, if only to have a walk around the grounds; fresh air really does help. Rempy speaks wise words

fanjoforthemammaries7850 · 23/01/2011 08:22

I had one too, although I was 15, and was also fine. Hope he picks up soon, how worrying for you!

purplearmadillo · 23/01/2011 10:21

Thanks everyone. He ha eaten some breakfast and has definitely perked up a bit. Fingers crossed he should be allowed home later.

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alibobins · 23/01/2011 13:00

purple hope he continues to improve what a scary time for you x x

purplearmadillo · 23/01/2011 19:54

He is home but still very poorly. Am going to have an anxious week I think checking him all the time.

Really want to sleep in with him but I have no camp bed or sleeping bag and I know dh won't have him sleep in with us (another story). Am thinking of using baby monitor next to my bed. Hope that will be enough.

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orangina · 23/01/2011 20:01

Put DH in DS's bed and have ds in with you....

(don't know what the story is w DH not having DS in bed w you both, but think DS has CLEARLY got to come first.....)

wfrances · 23/01/2011 20:18

buy or borrow something and have ds lying next to you on the floor,hed think it was an adventure .thats what i do with mine when theyre ill- they play camp out in mummys room and of course you get to keep a constant watch over him.if you cant get anything we have used rolled up quilt and blankets anything to hand makes it more fun.

humanoctopus · 23/01/2011 21:37

When my ds had his tonsills out, the surgeo told us that he had to sleep in our room for 3 weeks!
He sleep perfectly in our bed, with either myself or dh in the bed with him and the other of us on the floor, next to the bed.
It was a bit of an adventure, we decided to just embrace it and make it as good as possible.

Curiousmama · 23/01/2011 21:40

yes ds should come first.

Hope he'll be ok.

Dansmommy · 23/01/2011 21:45

He needs to sleep in with you. Your DH sounds like a dickhead.

Curiousmama · 23/01/2011 21:46

agree with Dansmommy.

Dansmommy · 23/01/2011 21:46

Sorry, that was harsh. I really hope your son is better soon.

Northernlurker · 23/01/2011 21:52

Hopefully you've got him in with you now. Tell your dh to get lost if he thinks anything else is a viable option. What part of post operative bleeding is he failing to understand Angry
Hope you are ok, must have been v scary for you. If you've any concerns ring the ward he was on straight away. Also if he should start to bleed - which is very, very unlikely, call an ambulance straight away as well.

ScarlettWalking · 23/01/2011 21:57

So sorry you are going through this :(( take your baby in with you! For so many reasons take him in.....

thumbdabwitch · 24/01/2011 01:25

Do you have a sofa? banish your DH to it and have DS in with you. What a selfish attitude to have!Angry

Hope your DS continues to improve and there are no further complications.

Curiousmama · 24/01/2011 11:10

How is your ds today?

Elibean · 24/01/2011 11:46

Oh Purple, how scary and upsetting - I'm sorry. I do remember when dd had her tonsils/adenoids out, a couple of people shared haemorrhage stories with me, it is fairly common - but they all ended fine.

I have had monitor by side of bed when dd has been poorly, but if he's still in a lot of pain, or very unwell, or you are just scared, then I would find a way to have him in same room as you. I have taken sofa cushions up to dd's bedroom a couple of times, and curled up on those, to be beside her - and when she had her op I had her in beside me for a week because she was in a lot of pain and needed me, and pain relief, regularly.

Its very stressful being in hospital with a little one, and pretty stressful being home when they're recovering - take care of yourself, put yourself and ds on the sofa and watch DVDs or something as much as you can. HOpe he bounces back fast.