My newborn girl is going to die, not sure what to do now.

[cupofteaplease]

I gave birth to our little girl yesterday at 1.15pm. They told almost straight away they thought she had Edward's Syndrome. Now they think her brain just didn't develop. Noone can tell us how long she will be with us, nobody knows.

My two dds are 6 and 4 and were so excited about their baby sister. They are coming to meet her later. How can I tell them she will die?

As she is breathing unaided and tube feeding, they are caring for her in SCBU, but I have said if they can't do anything, I want to bring her home to spend her last time. I wish we knew how long she had.

I think my heart is breaking.

We used to have a consultant we called Dr Death

You little Bea is so lovely. I am glad today was good and I wish you another tommorow.

X

Oh Cup have been following from the start - but what has finally prompted me to write rather than lurk is not only the fact you are an amazing and tiger-like mummy who goes grr at Dr Death - but the fact that Bea is so totally exquisite. What a stunning, precious little bubba - infinitely, painfully precious and sweet. Wishing you good days on top of good days with your lovely, lovely girls.

Such beautiful little girl you have there, I am so pleased Bea is home, where she belongs with a family who love her.

Sending you all lots of hugs xx

well i think there's a lot of us on mn rooting that dr death is just plain wrong. it must be such an emotional rollercoaster. don't feel guilty for feeling despondent or for feeling happy - just try to enjoy beatrice when you can....these days (let's hope longer than days) are so precious - a real gift.

she is beautiful

only just saw your thread. Little Bea and her sisters are all gorgeous! She is very very lovely. Hugs!

Didn't know you were a teen Mum cupoftea!! You look about 19, and Beatrice looks so adorable.

Take Care, all of youxxx

Lovely photos cupoftea You really do have the 3 most gorgeous girls. All big eyes and innocent looking.

I'm pleased you are home again.

I am so sorry you feel written off by the Dr's.

So glad you're all back home. Thinking of you all, keep on fighting little lady Bea x

ah you ALL have the beautiful eyes, i see. Bea is the cutest thing on two skinny legs, cupof, she looks so dinky and preemie, totally reminds me of dd2 at that age.

nice post cup - every time i click on your photos bea makes me smile,she is gorgeous x

the dr sounds awful - how can you not even look at baby?

let's hope she continues to do well xx

What lovely photos. Beatrice is beautiful, as are your two big girls. Adorable.

I am glad you have had a good day.

Glad to hear that you've had a good day today - lots more of those to come hopefully.

Thanks for sharing more photos, you and your family are all beautiful. Bea will certainly be benefitting form all the love and attention that she is receiving from you all.

xx

beautiful photos

Hi Cup
I've been keeping an eye on your thread after you originally posted on the pregnancy board before Beatrice was born. I'm so glad you've been able to bring her home.
I don't really have anything much to say but just wanted to say that it's nice to see your positive attitude and, even though it's obviously extremely hard sometimes, that you're not giving up on little Bea and why should you? doctors aren't always right. Keeping my fingers crossed for little Bea, both mine and DH thoughts are with you (he keeps asking me for updates) x

You're an amazing mother cup, your girls are lucky to have you. I'm so glad it was another good day, and hopefully tomorrow follows suit :)

Great to hear you sounding so much more positive cup. Hope today is a good day for you too.

thinking of you. xxx do you need any tiny baby clothes? I have lots of early baby clothes from ds1 that I would be happy to send you.

Wishing you all another happy day Cup.....and another and another xxx

Oh, she is adorable - as are her older sisters.

Glad that you are sounding more positive, it must be awful waiting for the results.

Hopefully the results will help give you an idea of what to expect - although she seems pretty good at confounding expectations.

I hope your family get some better news this week CupOf ...you have been in my thoughts all week.

Sending lots of love to you and your beautiful family.xx

What beautiful girls you have.

Beatrice is lovely and what a lucky baby girl being surrounded by so much love!

Keep up that positive thinking, you sound like you have a fantastic support network and we're all thinking of you.

Sending you positive vibes cupoftea x

Only just come across this thread. My love, prayers and best wishes to you all. Beatrice is simply beautiful,