My newborn girl is going to die, not sure what to do now.

[cupofteaplease]

I gave birth to our little girl yesterday at 1.15pm. They told almost straight away they thought she had Edward's Syndrome. Now they think her brain just didn't develop. Noone can tell us how long she will be with us, nobody knows.

My two dds are 6 and 4 and were so excited about their baby sister. They are coming to meet her later. How can I tell them she will die?

As she is breathing unaided and tube feeding, they are caring for her in SCBU, but I have said if they can't do anything, I want to bring her home to spend her last time. I wish we knew how long she had.

I think my heart is breaking.

oh cupoftea i am so, so, so pleased for you all.

that's the understatement of the year actually! I nearly cried when I saw your update.

she is, as others have said, simply beautiful. lovely, lovely little thing.

Fantastic, amazing news cupoftea! Sitting here with a big smile on my face for you. To be honest I sat for ages last night sad for you, wondering what to say to you and ending up saying nothing. This is the best news I've heard all day, really is

What excellent news!
Your little girl is beautiful,by the way.
Take care of yourself.
Un mumnetty hugs to you and your family
(((((( ))))))))

still so pleased for you, cupof, have been thinking about baby B all day... she just looks like a little fairy child in that photo, it's so adorable.

What fantastic news - I am so so delighted for you and your family. :)

Your baby girl is absolutely gorgeous. So pleased to hear your amazing news!
x

Am so thrilled for you.

What a week you have had!! So, so pleased to read about your lovely daughter

I hope that the beautiful Beatrice grows and flourishes and joins the rest of your family soon.

How AMAZING!! I came to look at your thread, fearing the worst, but saw your amazing news.

I know you may have hurldles ahead, but am wishing with all my heart that they are little ones.

No post has ever made me so happy

cupoftea that is such wonderful news. i am so pleased for you and your family and of course for little beatrice- who is just a tiny bit scrumptious!

I've been following this thread and when I saw your post about it not being Edwards sydrome I cried!

Thoughts and prays still with you

Cupoftea I have read this now from start to finish and cried through sadness and happiness. I feel drained, you must be feeling utterly exhausted. I couldn't just read and run. I am so pleased that Bea (lovely name) is here. She is lucky to have a fab mummy and sisters. Wishing you all the luck in the world, and hope she's coming home very very soon.

Cupoftea, I've just seen your update regarding Beatrice's condition, and I'm so, so happy for you all. I hope that you get all the answers you need and that you see Beatrice continue to grow healthier and stronger everyday xx

Oh I'm so pleased! All the best of luck to Beatrice in the future!

Wonderful news.
Beatrice is beautiful - love to all your family. x

She looks sooo alert! I hope things go well and that's you'll be able confidently to move this thread out of Bereavement soon.

wishing baby Beatrice and you and your family all the best - I hope she goes from strength to strength xx

Awwww - thinking of you all and keeping fingers crossed that Beatrice gets stronger and stronger - absolutely beautiful photos!

the best news - keeping my fingers crossed for all of you in the future x

oh cupoftea, such heart warming news

crossing everything for you and yours
xxxxxxxx

Wonderful, wonderful news, cupoftea! And wishing you lots of peace and strength for what's to come xxx

I just read this whole thread (mostly in tears) and am so happy that you've had some good news. I really hope Beatrice continues to get stronger.

Delighted to read your update. Hopefully you will get a proper diagnosis soon so that you will know what you are dealing with. Your beautiful little girl has already shown she's a fighter.

cupoftea, I'm praying for beautiful little Beatrice and hoping that the good news that you have had so far keeps coming and that she grows bigger and stronger. She sounds like a such an amazing little fighter.
__

In the wood the trees are tall
Up and up they tower;
You and I are very small
Fairy-child and flower.
Bracken stalks are shooting high
Far and far above us;
We are little, you and I,
But the fairies love us.
C.M. Barker

This is such wonderful news cup.

One day, you will be able to show her this thread so that she knows how many hearts across the globe she has touched.

All love and good luck to all of you. What a rollercoaster, but hopefully now the end of the long ride is in sight. Time for Bea to face the ups and down of everyday life now! And I hope she enjoys every minute.

Hugs to you all. xxx