...to be really sad about this story? (upsetting link)

[Janoschi]

randycourtneytripproth.blogspot.com/

I've been following it for a while and have to confess to a little cry when I read the last post this morning.

Just gave my little DD an extra big hug .

Ooops, my link didn't work.

Here. randycourtneytripproth.blogspot.com/

YANBU.
that poor family.
RIP Tripp

OMG, How sad is that? :(
Thank you for sharing it though. It's def one of those things you need to sit down and read when your kids are driving you nuts, just because they are being normal, healthy kids.

:(

poor Tripp.

RIP

x

That is sad. Do you know the family?

I think a warning to others that the photos immediately on that link are a bit distressing to see may be advisable here. :( Poor little boy. RIP.

Oh my god.
So sad.
What suffering.

RIP little Trip.

Those photos are heartbreaking.

so sad..

My DS is the exact same age

Having a little cry, his poor poor family, and him

So sorry, didn't think to warn about the photos. No I didn't know them, just read bout them a while ago in a newspaper and ended up following the blog. I'm not religious at all (verging on the vocally anti, in fact!) but in this case I'm so glad she has something to draw strength from.

Just keep thinking about the poor boy and his life.

RIP little drummer boy

His family look like they are close and did an amazing job. Despite everything he went through it seems like he was truely happy and loved so much

Thanks for sharing. That little lad went through so much... I want to go and wake the baby up to give her a hug.

I am sobbing. Have read about this condition before wrt James Lynch, another beautiful boy taken too soon.

There must be something we can do to help in some small way.

Your link should contain a warning.

Goodness me I never get emotional on these things but that made tears roll down my face - just the sheer raw grief. I hope his family find peace. Makes you appreciate the small things all of a sudden.

BTW the pics of his suffering are very raw but not offensive if anyone is worried. Its just highlighting the condition in a very visceral way.

James' Mum posted here for a while I'm sure, and something was done. I was part of it but it was a while ago now and soon after my own DS was born so memory not that reliable. All I can remember clearly is his name and his perfectly beautiful little face which is why I found the link.

How sad, poor little chap

Information and donation

It doesn't take long at all to donate, does it?

If you can't, do you think that you might be able to share the cause on FB or wherever?

Anyone else?

A friend of mine died from the complications of EB last year, it is an awful condition.

Hi there, we've edited the title of this thread to include 'upsetting link' just as a warning for others.

Utterly heartbreaking.

It upset me too, so YADNBU, that poor family. These things shouldn't happen to anyone, let alone little babies.

Really sorry I didn't mention the upsetting nature of the link. Still feel so sad - going to look into doing something proactive for DEBRA, the UK charity for this horrible condition. Thank you to the Mumsnet team for adding the warning to my link.