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Conflicting advice on possible adenomyosis, fibroids and HRT in perimenopause

5 replies

Vintageroses · 13/08/2026 19:41

I’m not sure if I’m overthinking it all but if anyone who has been diagnosed with adenomyosis or even someone with less brain fog than me could give me their thoughts on what if anything I should be doing , I’d appreciate it.

I am 50 and peri. Changed from sequential hrt to continuous hrt in January due to headaches and migraines. was having natural periods (I think ), rather than withdrawal bleeds on the sequential. Saw the GP again 2 weeks ago and told her I was having heavy periods, spotting in between , bloating , constipation , cramps / pains. She said she would have expected me not to bleed on continuous and would send me for a scan.

scan results came back abnormal. Enlarged and heterogenous womb , possible adenomyosis , no obvious fibroids , pelvic congestion was the gist of the report.
GP sent me on the cancer pathway to gynaecologist and told me to stop the hrt or at least cut the patches in half until cancer was ruled out. She also said it could feed into the adenomyosis.

so, letter said I’d be having another scan , a hysteroscopy and a biopsy. So, I turned up at gynae having taken painkillers and with a bladder full of water. worried somewhat that I could have cancer or at best adenomyosis.

Gynae seemed very blasé, said , there’s no reason to think cancer , you don’t need a scan , a biopsy or a hysteroscopy. There’s a couple of small fibroids but nothing to worry about. When questioned about the possible adenomyosis she told me , it’s a benign condition don’t worry. She then said I’d be better going back to sequential or having the mirena coil put in. I should up the dose of the hrt , half a patch is no better than none at all. That basically I’m bleeding because I’ve gone on continuous too soon and the bloating and constiparion is likely some other cause.

i was just relieved to be told I didn’t have cancer but now I’m thinking , so i may or may not have adenomyosis which could be making me bloated and painful but it’s ok it’s benign so I’ll never know ? Is hrt good or bad for me ? one wants me to stop hrt the others telling me to up it . What about the fibroids too ? scan report said there were none, gynae said there were two. Do they grow ? What happens ? I’ve had scans before and none of this has been seen.

anyone who has been diagnosed with adenomyosis, how was it diagnosed ? What is the treatment ?
do I just have to put up with the cramps and bloating now ?
it seems like they all say different.

OP posts:
Frannieisnthappy · 13/08/2026 22:49

Hello,

Mirena coil might be worth considering.

I did have the coil as part of the HRT treatment to address heavy bleeding but it wouldn't be my first choice. I still had bloating, weight gain and also it definitely affected my mood.

I dont think there is actually a cure for adenomyosis - just various interventions to address some of the symptoms.

Sorry not to be more helpful.

holidayhelpneeded1 · 14/08/2026 13:08

I believe the only real cure is hysterectomy for adenomyosis. My surgeon recently told me to try the mirena coil to see if that helps but if not he advises hysterectomy.

I will be honest your gynae sounds rubbish and a bit too blasé.

I would be asking for a referral to an endometriosis specialist as adenomyosis and endometriosis can often go hand in hand and quite often isnt seen on scans, especially with someone not well trained in spotting it. I had at least 5 ultrasounds, probably more and not one of them saw any endometriosis and no one even mentioned the adenomyosis. It was only when I saw a specialist that he saw that and the endometriosis I had to have a laparoscopy to find.

The specialist also said any changes in bleeding or irregular over the age of 40 should be investigated and offered me a biopsy, so im surprised that wasnt offered.

Regardless of whether she feels there is nothing concerning, you have pain and bloating and that needs proper investigation and treatment.

It might be worth trying the mirena coil while you wait to see someone as this seems to help some people (im currently trying it and yet to see any benefits but hoping it settles).

Its so frustrating when you arent listened to but keep pushing and see if you can get referred to someone who will actually try and help. Too many gynaes seem to know so little about endometriosis and adenomyosis and are so dismissive, it makes me angry.

Vintageroses · 15/08/2026 15:52

Thankyou both.
i think I will try the mirena coil. I had to go to gynae for polyps a few years ago and the first thing they did was a biopsy !

OP posts:
Emso21 · 17/08/2026 10:10

Heya Vintageroses, have you tried speaking to a functional Dr before? The way they treat menopause is very different they even prescribe customized HRT which I find v interesting. Most Drs have no clue what to do with patients especially in the UK. I don't even bother going to the Dr for hormonal symptoms anymore - i go straight to a functional Dr and there are many accessible/affordable options these days.

Vintageroses · 20/08/2026 11:36

No I haven’t @Emso21. Where would I find a good one ?

OP posts:
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