Twisted ovarian cyst

[mondaytosunday]

Last week I had the most unbelievable pain and vomiting and it turned out to be a twisted ovarian cyst. After CT scan, internal scan and pelvis exam and blood tests they think it’s unlikely to be cancerous but can’t determine that for sure til it’s removed. It must have untwisted as the pain has subsided though I get twinges. I need an mri before removing it and though I’m on a two week referral the MRI is booked for mid October! What I’m anxious about is they told me there’s a 50/50 chance of the pain returning. I’m post menopausal. Anyone had any experience with this and did the pain come back? How long did you have to wait for removal? How was the op and recovery? I live alone (widow, one child at uni one who lives away) and stressed about the pain it was excruciating. thanks.

My daughter had one of these. Once they made the decision to operate it was done within a week and she was home the same day after the operation. Very fast recovery time. it was slightly different though as hers didn’t untwist and she was in hospital until it was removed.

Hope it is sorted quickly for you.

Why are they waiting until October?! That's ludicrous. Normally these are taken out PDQ

I had this in my 30s. My gp insisted I had IBS but one night the pain was so bad, vomiting, struggling to walk, I drove to a&e at 3am - not my best decision - got there and passed out in triage. They scanned immediately, and I was in theatre by 8am.

I don't mean to frighten you but if the pain returns, DO NOT mess about, go straight to a&e. Dermoids can be nasty. Because mine had been ignored, I lost an ovary & tube, needed a week in women's surgical and seven weeks off sick. Wasn't allowed to drive for 6 weeks.

Thanks. I will go straight back to A&E if the pain returns - they have told me as much, and I will likely have the it if that happens.
I think they want an MRI to see exactly what they are dealing with. After the scans and blood test indicate it is unlikely to be cancerous and as I am post menopausal it is not an emergency (they don’t need to worry about saving my ovary), but I should still be seen and diagnosed for sure within 28 days according to government mandate. I contacted my GP to see if they could request it expedited but they have batted it back and told me to contact the hospital directly which I have done (PALS). I await their response!
I think the long wait is due to the usual backlog. My MRI is even scheduled at a different hospital.
For those with experience- I have to drive six hours there and back to drop my DD to uni in September and I have to go to Spain for business in October. How long after the op did you feel back to normal?

Mine was back in the late 1980s when only ultrasound was available. The pain was excruciating, but it was diagnosed and removed within 48 hours. I didn’t have keyhole as a partial removal of the ovary was also necessary. I couldn’t drive for 6 weeks.

I had this in my early 30’s. Woke up one morning feeling sick and a sore stomach. By mid morning I was vomiting and in agony so went to my Doctor and they sent me to hospital.
Hospital kept telling me it was an ovarian cyst and that I shouldn’t be in that much pain, after 2 days they decided to do keyhole surgery to drain. However, they ended up having to open me up as they tube had twisted, and was like a fat sausage, rather than like a strand of spaghetti and the ovary had died.
Spent a further 3 days in hospital and the had to stay off work for 8 weeks.

I was 26 when I had this. Excruciating pain and looked pregnant. Went back and forth to doctors as it kept twisting and untwisting before it was diagnosed and then rushed to A&E in the worst pain and operated on the following day. 10cm dermoid.

Goodness! Well it was diagnosed right away with the CT scan. They agree it has to come out and if course when talking about it with them it sounded it would be sooner rather than later but they don’t book the tests!
It should be keyhole, and they now do it as same day if done in the morning (which they should with me as a type 1 diabetic so I don’t have to fast all day).
No word from PALS yet - Google says to email the cancer booking team next.
I’ve had two Caesarians and understand if there’s a lot of scar tissue they may have to open me up rather than keyhole….

Mine exploded.

(that wasn’t the word they used).
but it got untwisted and dumped a load of biological gunk into my abdominal cavity that meant I was very very ill.

I was on a waiting list for it to be taken out but never got the chance.

it was very very unpleasant