Not sure what to do with letter found on NHS App

[BooksandTeaandSewing]

I have no idea what to do with this info I just found on my NHS app.

I have a letter on the app from 2014 following an ultrasound I requested. It concludes 'Probably bilateral poly-cystic ovaries'. It recommends a blood hormone analysis that was never done. This possible condition was never communicated to me and I don't know how to digest this. I was told everything came back fine and it must just be stress.

For context, I was at uni at the time with a crappy uni GP. I had months between my periods and I had to fight to get this ultrasound done. I've been looking up the symptoms and some of them fit me (acne, struggle with weight loss, inconsistent periods, anxiety/depression). It feels like this could explain a large portion of my adult life. I'd say some of this has gotten better since I had my dc 4 years ago.

But where do I go from here? Do I book a GP appt? I feel so confused and kinda gaslit.

Did you have trouble conceiving?

have you been back to the docs since 2004 re any of the symptoms you mention?

No trouble conceiving (I actually got pregnant on our first month of trying). The only thing I've been to the doctors for is the anxiety. I've had further support for being overweight but not from the GP

Go and discuss it with your doctor.

That's awful and I'm sorry it happened to you. I understand why you are annoyed.

Something similar happened to me - had a ultrasound in 2007 on ovaries for suspected polycystic ovary syndrome - I was about 20 at the time and the Dr just glossed over the results and I said I didn’t have it. As I was quite young I didn’t question it. Earlier this year I asked about that scan due to something else I was concerned about and the Dr looked at my scan results from then and told me that it said I had cysts on my ovaries but my I didn’t fit the hormonal criteria to have polycystic ovary syndrome! I said well I know it wasn’t you but why has it taken 20 years to be told the proper results!! The Dr at the time made no mention of me having cysts on my ovaries, and it could have explained a lot in the past 20 years! Infuriating

You can have cysts on your ovaries and uterus too without it being polycystic. I had them most of my life and it was linked to adenymyosis and endometriosis. I had up to 28 a month growing and bursting for 30+ years before I had a hysterectomy

I was also quite surprised to find out that I had polycystic ovaries when a doctor mentioned it in passing. I’d never been told either.

You’ve been enduring all these symptoms for 12 years since that appointment and never raised with any doctor aside from anxiety?

Like I said, I was told the irregular periods were stress and not an issue by my doctor.
I went to the GP for the symptoms that were impacting my life and I thought they could help me with. Nothing on that list screams medical intervention except for the ones that I actually sought help for.
I've actually sought support for all of the symptoms but not always from the GP and always separately. The idea that they may be all connected feels huge and not something I had ever considered because I wasn't given all the information.

Wow, so it's not just me! This is wild. Why aren't we given all the information?! Are they expecting us all to become hysterical women??

Do you have hirsutism and hair loss? Did you have an ultra sound when you were pregnant @BooksandTeaandSewing ? Did you have blood tests when you were pregnant? If you had no trouble conceiving and no mention of cysts or scarring from ultra sounds, no concern about your hormones/diabetes during your pregnancy and don't have the hair issues or any of the other symptoms it is very unlikely you have PMOS. There is much more to this syndrome than ovarian cysts, which is why it was renamed to reflect the impact on the endocrine system.
You may have had functional cysts at the appointment in 2014 where they were seen.

Ring up
get an app
get the scan
clarify whether you have
and please update!

So what’s the issue now? Are you suffering from any symptoms?

PCOS has been renamed as PMOS, have a look online and read the latest guidelines for diagnosis op. I’d definitely go to the GP and discuss what’s happening with your medical record, and if you feel you have some of the symptoms of PMOS push for an official diagnosis which can lead to treatment options