Been diagnosed as having adenomyosis, endometriosis, a fibroid, and polycystic ovary syndrome and not sure what to do or feel.

[morbidd]

Hello, not sure what I’m looking for here really. For the last few months I’ve been feeling so unwell and discovered I had extremely low ferritin, therefore have had an iron infusion. Was told there was a change it was gynaecology related due to my heavy periods. So I’ve had an MRI only to be told I have all of those issues.

luckily I don’t want children as I understand it’s difficult with PCS. But I just feel numb and said that I’ve experienced such bad periods all this time, thinking it was normal only to find out all this was growing inside me.

Does anyone know where I go from here? I am managing it via the combined pill with no breaks. Also the possibility of surgery in the future.

Does anyone perhaps know where I can get further information, advice or support? Or also going through something similar and can share their experience?

Thank you

My reaction was anger at the state of womens medicine and the fact that I’d gone decades with pain etc every month (bar pregnancy)

Oh god exactly. I’m 35 and been suffering all the time, unaware that this isn’t normal.

I had a hysterectomy in your position. Like pp I had been fobbed off for years - I was in my 40s by the time I had surgery.

Did it improve your quality of life?

Yes, immeasurably. Once I had recovered I was pain free and obviously, no more periods (prior to the hysterectomy my periods had been all over the place).

That must have been a completely shit diagnosis to get all in one go. As @Snorlaxo said I felt anger because I felt gaslit, not listened to, not believed. I have endo and was diagnosed by laparoscopy 23 years ago after 8 years of going to the GP. Tale as old as time.

What I believe. A hysterectomy would be beneficial for adenomyosis but there is debate over whether it is beneficial for endo because it depends how much endo there is and where it is. The surgeon needs to remove as much as the other endo deposits as possible.

I follow Andrea Vidali MD on Tiktok, he performs several surgeries daily so sees it all and posts videos of MRIs and the actual surgery. He specialises in endo on the bowel, bladder, rectum, diaphragm and the most scary, lung. He also deals with the usual ovaries, womb etc. He is all about promoting endo awareness and how to deal with it effectively.

https://drvidali.com/

The best advice I can give you is to get as informed as possible about it all from professionals and legit websites. Then you can make informed decisions about your body.

Thank you, I shall check that out.