Cystitis hell - please help me sleep

[ByChicCat]

Hi all,

Does anyone have any tips for how to deal with the constant need to pee that accompanies cystitis?

I can handle the pain associated with cystitis easy enough, I just can't deal with the constant discomfort and fidgety-ness of needing to pee every second.

If anyone has any tips for this it would be much appreciated! Dreading another sleepless night lost to this nonsense 😢

I find drinking tons of warm/hot water helps way more than cold water. I'm not good with 'downing' water from a glass or bottle so I glug copious amounts of hot (as I can handle) water down with a straw, take ibuprofen, wait until I need a huge wee and usually after that wee the urge and the irritating pain subsides. Agree that hot water bottle between legs helps a lot.

Thank you, I've not tried warm water so will add that to my repertoire!

I put a flannel in my pants and essentially let myself just pee a bit each time I feel as though I need to "try for a wee". It's the urge more than actually peeing for me, iso I try to catch my body out...

I do not know if this makes sense or is stupid. But something that, along with the hot wheat bag, works for me.

Definitely hot water bottle !

It's hell
Surely tons of women must have died of this before antibiotics ?

Just bumping this as I think it got lost on the first page

Yes I wouldn't be surprised! I feel terrible for those who have no access to healthcare, can't even imagine it

@ByChicCat how are you doing?

Wear pants then place an ice pack on the outside of the pants !

Was feeling better on nitrofurantoin, but three days deffo wasn't enough. So got put on penicillin, which did next to nothing.

Have pissed my doctor off by insisting on a seven day course of nitro, she just wanted to send my urine off for a test and admitted that it would likely come back negative due to me being on antibiotics for a week. So I stood my ground on having another course, I feel like I'm very slowly turning a corner but I don't want to jinx it.

There's no pain anymore, but I've still got urgency so I'm not really sure what to make of it!

Hello, if you’re still experiencing cystitis, you may want to try this:

Protocol for Life Balance – D-Mannose Powder, 3 oz (85 g).

I notice improvement within just 2 days. It can feel almost like magic—though it’s important to read about itbefore use.

I'm on this for UTI now - and not clearing up

Hi Betty, did you try this powder before , it is like a magic for me
Protocol for Life Balance – D-Mannose Powder, 3 oz (85 g).
my infection was cleared up the next day.
I bought it from IHerb website.

Thank you so much for this will try it - I've come back to this thread after getting another UTI so v grateful to see this tip

Hi Betty , I hope it helps you.

check this YouTube video

I don’t take it all the time, only when I have an infection. I take one teaspoon in the morning on an empty stomach, diluted in half a cup of water. I wait about 30 minutes before eating.

Then I take another teaspoon in the afternoon.

Take care
Tamara

I also take d-mannose and drink loads of water with a bit of bicarb. I usually try to wee, drink a pint of water, lie down again, wee after 2 mins or whatever and gradually increase the time between wees, drinking again after each wee. I saw a recommendation for Prof Malone Lee’s videos on UTIs on here, which I found incredibly helpful. They definitely disrtracted me from the pain as well.

m.youtube.com/watch?v=M2smEEBni38

Hello,

I suffered from cystitis for eight years and tried everything I could, but nothing helped.
Then I found this powder, it worked like magic for me! Check the link below; the powder worked better than the capsules.
(rotocol for Life Balance
D-Mannose Powder, 3 oz (85 g)

The link:
uk.iherb.com/pr/protocol-for-life-balance-d-mannose-powder-3-oz-85-g/116876

And here’s a YouTube video review.

I don’t take it all the time, only when I have an infection. I take one teaspoon in the morning on an empty stomach, diluted in half a cup of water. I wait about 30 minutes before eating.
Then I take another teaspoon in the afternoon

Tamara

This and drinking water with bicarb of soda