Talk to me about ADENOMYOSIS please

[Safa2]

Hi all can u all tell me ur adenI’m yo sis symptoms I am constantly in pain every single day without fail and the spotting is non stop I am on the Mirena coil and I am on Prostap with addback HRT and this has me my pain worse and made me feel horrendous 😒

The only cure is a hysterectomy.

I suffered with this and ended up on northisterone daily and then had hysterectomy - but kept my ovaries.

I don't think people understand how consuming it is

I have it, apparently. I had no idea, discovered by accident after a miscarriage (but explains alot).From my limited knowledge, tissue grows into the muscle... its very, very painful.

Can't comment on the spotting - may be caused by Mirena??? Anyway, no useful advice, just solidarity.

Thanks for ur reply how old was u when you had your hysterectomy?? I am in constant daily every day pain I am sick to death of it and cannot take it anymore … the prostap have made me feel worse… do u have any symptoms after ur hysterectomy?

It’s absolutely horrible isn’t it 😒😒

I had it no idea. Incidental finding on a scan. Wouldn't know I had it if I hadn't been told

Hi hun don’t u ever have symptoms tho? Pain bleeding etc ?

Had years of horrific bleeding and pain. Always told it was “ normal” - went to gynae and he saw how horrendous the bleeding was and booked me for a hysterectomy there and then! 8 weeks later I had surgery and have never looked back. No symptoms since and no pain 😬 I was 34 when I had the hysterectomy

No. I sometimes need a dose of paracetamol once at the start for mild cramps. No excessive bleeding either.

@Downandout24 I’m exactly the same I’m 32 and I’m sat here in pain sobbing away… I cannot take this anymore … did u keep ur ovaries

I was like you, life was absolutely miserable and I lived on heavy duty co-codamol and mefenamic acid because it was the only way the pain was dulled enough for me to function.

I had a hysterectomy last year at 45 and I've never looked back

@Oldfatandfrumpy honestly I am so tempted for one I did sign a consent form then changed my mind last week … I’m gona try the endo removal via keyhole if I’m still the same then ik have hysterectomy as I have endometriosis aswell if I’m still suffering at 35/37 I think I will or I may still want it next year I don’t know what I want anymore I rather be pain free than suffering like this

I did keep ovaries as although mine were declared < unprofessionally > shit …. My gynae felt on balance it was better to keep them and help balance the risk of osteoporosis and breast cancer if I recall.

They did take my tubes, uterus and cervix

That sounds really horrible, all of you have my sympathy.

I have it too, but like @HowIrresponsible I have no symptoms and no pain, never did. It was picked up at a scan to check postmenopausal bleeding. Having a Mirena fixed the bleeding.

My gynaecologist asked if I'd had painful periods but I didn't, so the adenomyosis probably started after menopause. Anyway, the gynaecologist said it'll do no harm and we can leave it be.

I had a hysterectomy and oophorectomy at 42.

EDIT - accidentally clicked on birthday cake gif and can't remove it,

I am in 2 minds again for a hysterectomy.. just balled my eyes out to my husband … don’t want to be in this body anymore.. surgery wait times r over a year.. has anyone been on prostap here. !??

@itsgettingweird did you spot daily ????

You need to insist that your GP urgently refer you to a specialist.

I was finally diagnosed with Adenomyosis and endometriosis after decades of chronic pain and heavy periods. At 45 it was awful and I was constantly flooding and having horrible pain...

The consultant I was referred to first tried a Mirena coil and meds like Norethisterone but nothing worked so I had enough and pushed for a partial hysterectomy and finally got my life back!

I kept my ovaries and cervix. No complications and no more pain :).

Same here. No pain at all.