Is there anyone here with endo and adeno or either that can advise me please

[Sara0]

As you can read the title need some advice I have been diagnosed with endometriosis and adenomyosis and I’m always in pain in my belly and have alot of digestive issues ….its not jus due on my periods it’s all the time ….

does anyone else have this yes I know this isn’t a doctor but my consultant appointment is in September and was wondering if anyone can shed some light for me please x

also my vitamin d is low and my iron and my cholesterol is high I’m not over weight I’m 62kg and I’m 5ft2

I have stage 4 endo, diagnosed from ultrasound
Had my first consultant appointment and MRI
The next stages for me are another consult with MRI results, a multi disciplinary team meeting, medical menopause for a few months and then operate to excise the endo

I have pain mostly on my right ovary constantly, period pain that I feel faint with (can't move, speak, anything) and bowel issues

@spikeandbuffy is ur pain there all the time ? Or just when ur on your periods ? Mine is there constant it sky left ovary as it blocked with tissue.. I to was diagnosed via ultrasound it was the specialist who done I have adenomyosis aswell as endo… and adhesions… yes bowel issues here aswell I really want to feel normal im sat at home sobbing away and im sick of feeling like this..

sending hugs ur way hun xx

All the time around my right ovary it pretty much hurts every day

I’m exactly the same but left ovary :(

I had adenomyosis.

I had a hysterectomy as it's the only cure.

If you are not planning on having children, or have completed your family or whatever I'd simply state this is your preferred option as it's the only cure.

A hysterectomy is the only cure for adenomyosis but unfortunately it does not cure endometriosis.

OP, it sounds as though your endo may be rectovaginal? Have you been listed for a joint surgery?

Read fast like a girl

i do want to be put forward for a hysterectomy and no I got diagnosed last week and I’m waiting for an appointment with the specialist in September.

i don’t know what endo I have all I was told is I have adhesions … endo and adeno.. I want anything for this all to stop… i have 3 beautiful children and 2 daughters that sadly passed away due to negligence in 2021 and 2022… my family is complete I need to focus on me now ☹️ iv been crying all evening feeling sorry for myself 😣

They'll have a good chat when you have your appointment, mine suggested the plan to me just from the ultrasound. But I had an MRI so they can see it in more detail
Mine wants to operate to remove it rather than doing a diagnostic op first