Anyone else watching? I binged the first 5 yesterday.
So heartwarming to see the young girl with seizures family being given options and a less scary treatment than popping out half her brain.
And joining up the families with similar gene mutations to the researchers felt like a true lifeline, even if treatment/cure was a long way off.
Most of the families seem to really be benefiting from being heard.
But the girl with the sickness, oh man her mother sent my spider senses off the charts. Not letting a seventeen year old know who what medications she's on or any agency over her options. The mum seemed to want to be right, more than she wanted her daughter better.
Not taking the option of treatment at the children's hospital seemed so cruel. Felt like time away from parental control might have cleared everything right up.