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SN children

Here are some suggested organisations that offer expert advice on special needs.

not quite the right place but im sure you lot know the answer

4 replies

lisad123wantsherquoteinDM · 24/06/2010 21:39

Ok DH has been under local hospital since his diagnosis of CML 16 months ago. TBH we are fed up with the terrible treamtent, lack ofinformation and also how many times results have gone missing.
We wants to transfer over to Royal Free where all the specilaist of this type of cancer are. BUT how do you do it? Do you ask the RF first? the specialist his under now? Not sure on process.
TIA

OP posts:
Al1son · 24/06/2010 23:10

Sorry I can't help but thought I'd give it a bump.

sugarcandymountain · 24/06/2010 23:32

I don't know, but have you been in touch with PALS (Patient Advice Liaison Service) at both hospitals?

lisad123wantsherquoteinDM · 25/06/2010 09:30

we havent been intouch with anyone yet, didnt know if it had to done via specilaist, GP or someone else

OP posts:
LollipopViolet · 25/06/2010 11:00

I'd second PALS, seems like a good idea.

No other advice I'm afraid, but here's a bump for the thread.

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