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Just feeling moaney..

31 replies

debs40 · 14/05/2010 16:45

I think there is alot of it about at the moment. Perhaps, we're all flagging at the end of a long school year.

Went to DS's assembly this afternoon. They have one every Friday that parents can come to.

DS was ill earlier in the week and off for two days so getting him back to school has been a bit of a strain. He's been really stressy in the morning and the teacher says he's been exceptionally tired. I've let him come home for the last two days at lunch time because of it.

He is so floppy and lolls everywhere (proprioception problems and hypotonia etc). In assembly, he was really flagging and floppy and then leant against someone. A teacher, not his own, beckoned him sternly to the edge of the row and made him sit by her. She obviously thought he was messing about.

He looked horrified. He hates being told off. I thought he was going to cry or run off. I caught his eye and gave him thumbs up but he just shook his head. As he was at the end of the row, I could see him clearly. When they all stood up to sing, he stayed sitting but eventually realised what was going on. He didn't join in though. Just look bewildered. I felt so sorry for him.

We can collect them after assembly and I sat with him on my knee reassuring him that being moved was nothing and that he hadn't been naughty. I then popped back into school for his sweatshirt which hed' forgotten. He'd had a stand-in teacher that afternoon and she said 'what's wrong with him'. I said he was tired. She immediately said 'well he's been fine all afternoon in class, he only looked upset as he left school'.

Groan....I said 'he was told off in assembly for being himself so he's a bit stressed but he's fine, don't worry'.

God don't you get sick of the defensive rubbish. A year on, they still don't really know what to do with him and I still look like I'm making a fuss over nothing. Yes, we have pockets of problems at school, but they still can't get their head around the fact that just because he doesn't lash out, doesn't mean they haven't upset him with changes to routines, tellings off etc and that this will come out when he feels safe.

I'm just feeling super sensitive as we have the ADOS next Thurs and I feel like, after waiting all this time, someone is going to say I've got it all wrong and the school will grin smugly at me. I know this is unlikely but I feel I go out on a limb every day protecting him. School have got better but it's like I always have to justify things.

I met a mum the other day whose son was at the same school for 6 months last year before she left to home ed. She had only good things to say as he'd arrived with a diagnosis and ed psych report and participation so they followed the ed psych guidance. They couldn't get the boy into school full-time so gave up in the end but shcool applied for a statement for him. It made me feel even worse but I know the help came about because of poor attendance which was a probelm for the school

Sorry, rambling now. But feeling crap and worried. A 3 hour ADI to look forward to with a service I've complained about. Will they start blaming us for his problems??

OP posts:
FuckingNinkyNonk · 17/05/2010 22:55

Don't be put off posting though. I'm sorry I mentioned it

debs40 · 17/05/2010 23:38

Don't be daft. I will never be put off posting here. You guys are the only ones who understand....aaarrgh

OP posts:
claw3 · 18/05/2010 00:01

babysitter, film and a beer sounds like a plan to me.

(not sure about Chris Morris, have no idea who he is)

claw3 · 18/05/2010 00:09

Oh well ds is awake, night shift begins. Hope you have a great Debs

debs40 · 18/05/2010 09:54

Well, after talking it through with DH, I have written to the head of service about the panel.

DS is having his ADOS with people he doesn't know and then there is a panel with a whole group of people who may have met him once (if that) but who haven't seen him for a year (yes, his SALT, Paed reports such as they were are a year old!) deciding on whether he fits the criteria.

The SALT saw him once and discharged to school as is the local protocol. The paed saw him for 10 mins to refer to CAMHS. He saw a Community Paed in March 2009.

We feel we are going through a dx process which has little integrity? How can they diagnose a child on such dated information?

We just want to ensure that we get the tertiary referral afterwards withiout argument.

OP posts:
StarlightMcKenzie · 18/05/2010 19:45

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