Hertfordshire , good /bad come tell me

[Phoenix4725]

ok I am moving into hearts on the Essex/hearts border wohoo no more stairs for Ds since have found a bungalow big enough for all of us ,they have agreed to keep ds at the s&L unit he is about to start in ESSex since its only 2 miles away their nearest option is 30 miles away

But anyone tell me what there like for , ot/physio equipment services ,lea for chairs as ds needs star chair Hospital paeds etc

so good or bad

wel;l if you are where I think you will, we wont be far from each other

feel free to ask away

lisa123

thank you

Did the pub Give it away lol It is in stagering walking distance ,Have a breakdown place behind me and could throw stone to train crossing.And it is not exactly a big village blink you will miss it
.

Drs will be in Sawbridgeworth have registed dc and going in tomorrow with ds3 and dd sort out prescriptions/referals .Will it be in herts or over in Harlow?.

How long did the referals take to come through am figuring got o go through child devlopment team yet again as ds is under 5.Who is good and who should Iadvoid .

And whereabouts is place for borrowing stuff would love to try ds with thinags.A

m hoping that there are some genral support groups to as ds does not fit into one box or another and do find it can be bit of struggle in nt world though do spend fair bit time due to having 3 more dc but all the other dc in Sl unit are bused in

lol you did say ask

I also live in herts and like you my C do not have ASD I have found things to be OK, got statement with out any problems. I thibk you where right in your earlier post that if you have a recognised 'condition'/problem, then the help is easier to get. I have had Physio, OT, S&L, pre school adviser with out to much hassle. There are also a few support groups around and if you want swimming you are not to far from the twon you mentioned earlier (posh Spice) where they have free swim sessions for Special needs on a sunday afternoon.

thank you

oh thats intresting to know , is the session limted to Sn only as at very least will have dd with me and ds3 obviously.

Will cross my fingers only thing Drs and me all agreed on was that ds did not seem be on the ASd spectrum.Physio in ESSex was crap once a year review and no programme used to have pay one to get decent advice , ot was even worse

ds1 and ds2 are old enough stay home

Well I think pub might be a give away

The place to borrow is in Welwyn but anyon from herts can borrow.

CDC have a huge waiting list, and are a real PITA. Only one to aviod that I know is Dr Raynee (sp?) she blames everything on the parents and has told 2 friends of our their children dont have ASD, but that they need to go on a parenting course, only for someone else to see the child and dx ASD

There is some SN groups in the area, and a few run out of my work place, so if you want to drop me an email can let you know.
We also have SN health visitor here, and she is great.
HTH

Believe it or not, I don't think I've come across many of them! Dr Battacharya before they were all at school, Dr Salter now for DS2. Have come across Dr Dalton. Meh. Helen Morgan....MEH!! Also now see Dr Turner and Dr Tillet for DD one is Paed, one is cardio not sure which is which . HOW come you get a referral to Dr Sirah for asthma? DS2 has almost died through his asthma 3 times, has it very badfly, all we got offered was a telephone conversation 3 yrs ago with ashtma NURSE. As for Murkja, does he deal with hypermobility syndrome, or just 'more severe' conditions? Am trying to get more help for my DC's as I don't think they are being seen by all the people they should be IYSWIM. Also see a dietician wrt DS1, but can't remember her name, or the consultant that we saw twice wrt his coeliac, he then passed us onto the dietician. Also used to see Frank in orthotics for DS2's piedro's but they've cut the funding, and DS2 hasn't been given any Piedro's since he started reception 15 months ago. Despite still needing them. But Frank is lovely.

GAH! Spellings! badfly- badly, ashtma-asthma.

Murkja is female Dr and no she only tends to deal with cp
Dr Turner deals with hearts , they all have their own intrests.I will be asking ds new gp to refer to London for hypermoblity syndrome but might talk to neuro first

ds2 and Ds3 are under Sirah.Has ds had regular hospital amissions that require a instay know he does not get involved till after at least 3 admissions.Maybe ask Gp tp do a referal

Ds2 was averaging 3 times a week at least and ds3 had several instays and he took under his wing as knew us.

Infact ds2 wore a ventolin pump for 18 months 24 hrs day

DD sees him as is ntrest is immnology and chest and she has little immunnity and has genetic chest condtion

Yes Frank is lovely but he struggles with funding and time .We now Go to Dorset orthotics not cheap but well worth it as in time/experaince and quality

Christ, DS2 has open door with children's ward for his asthma, has been admitted 3-4 times a YEAR on average. Thinking I will ask GP for a referral for that one!

i am suprised that no one has refered him to Dr sirah especially with a open door policy .He can come across as abrut but I credit him with saving ds2 and dd lifes.when dd was young i begged him to help he was one that agreed dd had problems she did no bloddy immune system

Sorry for delay in replying, Swim session in in Cheshunt about 20 min drive from you and no it is not just limited to Special needs it is for the whole family.
QE11 in Welwyn has just got a new team doing orthotics and they seem very good so far, the previously lot were useless I travelled to GOSH rather than see them, but so far so good I pick up new AFO tomorrow so can up date then.

lisad123

yes please will email you do you have cat?

oddjob ah first i need to past my test.Then swimming defintley sounds good .

Not sure where ds referals will be in herts or as we are so close to harlow send us there.But yes please for update will stay under Dorset clinic for now and reconsider

my email is minx101 at hotmail dot com

Well were here house is great ds can enjoy train watching without leaving homeVas well as plane spotting but was the trade of for bigger property and truth it's worth it lol we must be one of the few it did not put of

so far went to new drs and he won't do referals to paeds ot physio etc till ds notes get here so not a good start
and got to see hv go through all with her arghhhhh

Lea hmm seemink ok got meeting lined up re ds school placement

lisa will emal you soon just beeen mad rush plus no internet till 22march as no line in yet :cries' so on phone only

were in and settled still no proper internet though lisa have emailed you