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SN children

Here are some suggested organisations that offer expert advice on special needs.

moving forward at last!!! had to share :)

20 replies

lisad123wantsherquoteinDM · 08/01/2010 12:29

This is going to be a completely selfish post and a woo hoo

We have finally got an appointment for DD1 to be reassessed after she was given a informal DX in June, we get to see the communication disorder clinic on 3rd FEB!! woo hoo

Referal to CAMHS is going off asap (I hope)

And DD2 saw HV today who has agreed she does display some "intresting" behaviour and has agreed to do an indepth developmental check and hopefully refer to CDAC if needed

I have had to fight so much since Oct, its great to know its worth uit.

Keep fighting ladies, together we will make them listen

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waitingforgodot · 08/01/2010 13:11

Yay!! Good for you!

Marne · 08/01/2010 16:15

Well done lisa, its always worth pushing for what you want.

lisad123wantsherquoteinDM · 08/01/2010 16:25

Its gets better, had a call from health team about further assessment of dd2, and they want to see her next week

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StarlightMcKenzie · 09/01/2010 15:30

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StarlightMcKenzie · 09/01/2010 15:32

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StarlightMcKenzie · 09/01/2010 15:34

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lisad123wantsherquoteinDM · 09/01/2010 22:29

well I know we bypassed CDC with DD1 as they got the referal from CAMHS as GP had sent to wrong people we waited 6 months for a CDAC appointment for her BUT think that is because I called loads and then when they found out about DH I think they could see we were drowning pretty quick.

DD2 I will ask for her to be seen by same pead as DD1, so hoping hers will be quick.

Are you on FB SLM??

Who did you see at CDC?

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StarlightMcKenzie · 09/01/2010 23:18

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lisad123wantsherquoteinDM · 09/01/2010 23:32

ok, are you on anyone elses facebook? maybe find you that way? Im on SGK (of course) and rivens, thinks thats it.

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lisad123wantsherquoteinDM · 09/01/2010 23:34

oh dont talk to me about DLA we are are the process of appeal right now, and truely fed up. Its a real PITA, as if they decided to give it to us, I could give up work and get some much done for DD1, Im even happy to go into school and assist them there and start some good work with DD2, but hey, will keep on going with working and juggling

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StarlightMcKenzie · 10/01/2010 00:04

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lisad123wantsherquoteinDM · 10/01/2010 00:25

I had money advice come and do the forms with me see thats the down fall I guess she sleeps fairly well, jus wish she would sllep somewhere else other than home, I cant leave her with anyone

Right girly, Im going to get hold of you this way then LOL my email addy is minx101 at hotmail dot com, maybe then we can stop boring these lovely ladies with how crappy herts is, think we are bring down the tone LOL

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StarlightMcKenzie · 10/01/2010 00:40

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StarlightMcKenzie · 10/01/2010 00:40

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Phoenix4725 · 10/01/2010 04:40

can i ask what is a communication disorder clinic

StarlightMcKenzie · 10/01/2010 06:50

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Phoenix4725 · 10/01/2010 07:10

thank you i got the cdc we have been and lol they got ds all wrong .

ah ok was wondering if CDAC was to do with speech as such

StarlightMcKenzie · 10/01/2010 08:10

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Phoenix4725 · 10/01/2010 08:12

thank you , i tend to agree with professionasl lol onlhy time have
that ds is not asd but its widly accepted that he has severe language disorder

lisad123wantsherquoteinDM · 10/01/2010 09:11

DD1 has wonderful speech (sounds a like toffee nosed tbh) but her understanding of language, verbal and otherways isnt great hence, CDAC

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