So we managed to get a bed in the end! Had to go via A&E and by 11.00pm they were still adamant that they didn't have a bed. Then I sobbed (my party trick now, can turn it on at the drop of a hat!) and they finally found a bed on ...cardiology!! At least it was a bed and we'd got in the bloody building!
EEG on Tues wasn't particularly helpful. Saw a neuro (not ours but tbh we prefer him and despite being in the hospital for the last 4 days ours hasn't even been to see DS) who decided to take DS of the lamotrigine which we think has been causing an increase in seizures. He's upped the Clobazam and that's all he's on now. A bit about the clobazam as we suspect it makes DS violent and irrational (know how he feels) and he's had a couple of outstanding meltdowns since he was in!
So we were due to come home yesterday afternoon, then he had a prolonged absence seizure that they had to use emergency meds to bring him out of He hasn't had an absence since he went into status last April so that's worrying.
I came home last night after 48 hours on the ward and DH now there with him. Have taken day off work to spend with DS2 (naughty mummy emotion) so we can have some fun in the snow as I haven't seen him for 2 days
Hopefully DH will call soon after ward round to let me know next plan!