So after another dreadful night of seizures we have called the hospital and the consultant and they finally agree that things are out of control and that he should be seen. There's no space on the paediatric neuro ward so they are looking for space else where - that was at 9.30am and still no news!
Have had to send DS2 off with my parents just in case we get a call tonight which is making me sad as I have missed him since he was back at school today
Am very relieved though that we are being taken seriously - think my sobbing down the phone at the nurse on the ward helped a bit
Fingers crossed for a phone call soon!