How do you find the strength to keep fighting??

[lisad123wantsherquoteinDM]

I know I dont post here much, so sorry if its not the right place.

DD1 had an informal dx of ASD in June as a "formal dx would not be helpful at this time as everyone is managing ok"

In 5 months things have really gone down hill. DD1 is self harming, crying loads, panic is terrible and she says she is always feeling sad.
School really arent coping well this year and are struggling to keep her from panicing daily.

I called CDAC, they wont see us without a referal. GP wont refer us without seeing us again, and school nurse said she would get paprerwork in place. I have called school nurse 5 times and she has not returned my calls. SENCO isnt in most days and Im fast running out of steam.

How the hell do you do it? why do I have to fight so hard to get people to listen, I mean this is a 6 year old girl ffs!
Am I doing something wrong??

SLM, thanks for advice, our first appointment with CDAC only took 8 weeks! but it came from CAMHS to could be why, plus I called weekly
I will keep fighting and now have SENCO, Teacher and School nurse on board, hopefully we can move quickly. I didnt know about a working dx, will check that out thanks for that

I use the AS friends group in herts and the specurm girls group too. It was suggested i use Angels but havent done that, as they meet on a day i work.

As for DLA, we are going though appeal atm, as they turned us down, so awaiting date atm.

Thanks for all the advice, anything else you can suggest?

And SGK I guess i can forgive you