diagnosis of 9q34.3 deletion syndrome

[Kaz01]

i have joined this site to see if can get support, i am also a member of unique for rare chromosome disorders, i would like to talk to other parents who have children with rare chromosome disorders.

Hi Kaz, My DD has a deletion on chromosome 15 - Angelman Syndrome. I believe it's one of the more common chromosome disorder - but still quite rare. She's just gone three and is great!

Just bumping for you. There may be more people around at night Wellcome to Mumsnet by the way.

Ooops someone already has written

hi found a facebook page dont know where you know about it

www.facebook.com/group.php?gid=79429162091