beckwith wiedemann syndrome

[bunnybunyip]

Hello
DS has been diagnosed with BWS; are there any other BWS children out there on MN?

Hi

We haven't had the final diagnosis but are 99% certain that will be the conclusion.
We are looking for consultant/specialist and any help/support?

Thanks

Hi JS52
So sorry, was watching this thread but not very well obviously, have just spotted your reply.
Are you still there? Any news re. the diagnosis? Let me know, I will watch the thread like a hawk!

Still looking out!