Well went for our first child in need team meeting today and am so cross .paed , ot,physio, salt could not make it mind this might be to do with fact they had less than weeks notice
we started 30 minsl late and first words out the lady charing meeting who incendlty never met before .Was we will finsh at 11 and then i found schools etc submitted reports but yet i was not given or even see any copies of these
well the ss disablity worker opened with his report mentioning the disarray of stuff when pulled him on this he admitted house was clean though . when he visted which since i have 4 dc and one that does not sleep is hardly suprising maybe i should pack dc under stairs and lock up toys/.
that reall set the tone for whole meeting they statrted questioning toilet training so pointed out its only recently hes started understand when hes done a wee, so will be working on thisin summer holidays .
Apparently i wll be getting advice from specialist Hv told them good luck i only spoken to the woman twice in 18 months despite me asking her for advice maybe they can get her to return calls ,This despite me sayiong i already have found and took advice on toilet training
Then they was going on about physio and ot programs and what are they how often .Pointed out we see ot and physiotwice a year we dont have programms to follow from them told them what i learnt and do but would they listen they kept going on about me following a non existant programm from the nhs team .Then they was like you should encourage him to walk duh like you can make a 4 year old sit down when other kids are playing
oh and the respite they said was seen by crossroads in may and they agreed 2 hours week respite but this is not available as short of voulnters but they want to wait see if tehy can find someone rathe rthan direct payments hmm mor elike well hes going school September s hoho lets fob her of till then
Though had few goos moments am wondering how they will document in reports that i refered to the special hv and nt hv as chocalte teapots and they asked for clarrifcation so gave it to them and enjoyed pointing out to Lea rp and them that erm no statements not set in stone i have not agreeed to it yet
phew ok feel better for getting that of my chair
So basically will have anothe one October where they can waffle away