dd doing some thing new riven you about?

[trace2]

she started last week but thought it was a blip.

anyway her eyes have been rolling up in to her head only lasting a few mins on and off,when it happens i noticed her right first two fingers going stiff when her eyes roll.

could this be a new seizure? tried having my phone ready but we never know when she going to do it ,its so random and when i do get my camera or phone on to take its stopped

sorry for asking you have so much on butwhat do you think please?

bump for riven

Trace - it sounds like they may be part of a small tonic seizure which is when parts of the body stiffen. When W has his in his sleep his does what we call his Superman arm - it shoots up about his head totally stiff.

Hope you are all ok - must meet up soon x

thanks fatzak did think that and as you know its not all the story! we go to nuero soon i think we will be changing for an other one.

yes we will have to meet.how is your ds?

Not bad thanks. Had an odd episode yesterday that the epilepsy nurse thinks is a gelastic(no idea of spelling) seizure. He had a gasp whilst awake, then was laughing hysterically like a complete nutter whilst kicking his legs around. It was interesting as afterwards he said "That was like I've just been to someone else's house and now I've come back" He's never really been able to tell us how it feels. We are on the final change over of meds at the moment so am prepared for some unsettle moments. Back to school next week which always sends my stress levels sky high worrying about what he is up to there!!

thanks riven yes she is but dont sleep like after the big ones, just goes very quiet. and sits for about an hour