Jack's seizures ar a nightmare just now, waiting on consultant calling back, falling to pieces....

[proudestmummyever]

Hey all, ust as the thread title says am afraid, waiting on consultant calling bk, he will probably end up in hospital AGAIN, just soo depresses, had enough, just broken

Glad Jack is doing better today. I hope he stays well - I know what you mean about trying to avoid a hospital stay - they suck

Yeah bn taking ibuprofen, my sister gave me co codamol from dr, just had 1, it helped, gonna talk to dr in morning...really hope it is not endometriois, Poor u ladyfio having a leak, it's awful....Jack bn okish today, hope he stays like ths til tuesday, everything is crossed...Yeah SJisontheway HATE hospital stays...they r crap

PME, sending {{{{{{hugs}}}}}}} sounds really tough. Really hope your little man perks up soon.

Thanku soo much briochedoree xx

Well JACK had another 10 min seizure, same type as before, so phoned the hospital and tol him we are coming , as we have open access, thought I would let u all know... hope to god we aren't getting kept in, but if you don't hear from me tonight you will know we hve bn kept in, all I want is Jack's meds sorted n come home..not too uch to ask is it

Keeping fingers and everything else crossed for you and Jack here

best of luck. I hope you get in and out as quick as possible. thinking of you too

hope he gets sorted good luck, thinking of you!

Well...we are bk from hospital and no further forward.... Jack's consultant wasn't around, and isn't over the weekend either, so sent us home as Jack is well in himself apart from seizures, just his meds need tweaked so as we have appointment with consultant tuesday they said to hang off ti then as the consultant wants to assess him and have final say, so waste of time....

No riven, none at hospital, but were only there a couple of hours xx

oh no poor you and jack i hope he as a calm weekend till Tuesday!

Poor you and Jack. So sorry the consultant wasn't there for you when you needed him to be . Hope your weekend is ok, and Tuesday comes around quickly for you.

Thinking of you PME. What a distressing time you are having at the moment. I hope things are okay over the weekend.

Thanku guys for all yr nice words, and support....

Jack bn really good today, fingers and everything crossed it continues til tuesday and onward, but tuesday will do since I know he will be sorted out by consultant on Tuesday...xx

Have been offline for a while--sorry to hear what's been going on. I hope Jack has a good few days and you get some answers on Tuesday.

Thanku Arabica xx Good to have u bk xx

Hiya every1, Jack had appointment today, there was no nd to be thre all day as th consultant didnt have to put him into a seizure to assess him....I had caught 2 gd videos on my phone,(the one's on the links on ths thread) the consultant sed they are drop attacks, correct name "atonic seizures", and tht he has myoclonic epilepsy def, but unfortunately we have to keep Lennox-Gastaut-Syndrome at the bk of our minds as he may have it, or may develop later on but not right nw, as Jack has the different types of seizures and very hardto control epilepsy, so just praying that ths doesn't turn into LGS

Has also started Jack on 1ml keppra, morning and night, 2ml next week etc...and reducing the lamotrogine, so as keppra goes up, lamotrogine goes dwn til we stop it, but he will still be on nitrazepam 5ml morning and night and epilim 5ml morning and night...praying it works

Fingers crossed that the medication works.