genetic nurse came today

[trace2]

and looking at chloe thinks we been refered to right place , she thinks chloe as a rare genetic symdrom but need tests! but as ome symtons of angels syndrome but says she dont think thats the one or maybe have diffrent.

am scared now dont know what to expect as she says i have to be ready for a dx or not even if its bad

((trace)). hope the test results are OK and lead to positives rather than negatives for chloe.

Oh Trace, I know its hard but after all you have both been through, if you can get some answers it's got to help?

At last you will get appropriate and proper support instead of being passed from pillar to post like you have been (), and maybe knowing will take some of the 'what on earth is going to happen next' worry away.

It is scary - you've every right to be frightened, but it can only be good for chloe.

Thinking lots of positive thoughts for you and your lovely girl xx

i know we need an answer but i was so sure it was mild cp when she came first thing she said was have you noticed any thing diffrent about her features? ( which yes i have) and checked jacks pics and said she didnt need to take them in as she sees nothing wrong with him!

but as you all say chloe is still chloe and i love her to bits am scared they going to tell me some thing really bad but now just have to wait and see. i am going to enjoy her every day stop wasting time brooding and help her through the episodes