found out by letter today our pead is going to dischage her

[trace2]

hes been our rock but hes said he carnt help her anymore, we are under so many so hes been there from the first day, dont know what we will do with out him and i wish he would have told us our selfs,

Sorry to hear this Trace, can you speak to him about it? It may be that he feels that he isn't offering you anything & doesn't appreciate how you feel.

Does she have an overall paed in charge co-ordinating her care. IME this ahs been so important for us & ds2.

Oh that's the last thing you need.
Can you phone and ask for an appointment - even if it is the last one, just to talk things over about where he sees things going in the future?

how very unfortunate, did the letter say what's going to happen next with her care?

hes been our overall care and yes the letter says that hes going to see her two more times then giving her care under comunity pead who we already see,but i would have like to stay with him! i know he feels like hes failing us as he carnt help us, but hes not hes been there when ever we need him, but hes gastro and maybe discharging her the neuro may listen to him?

hes the one who got us the child in need meeting on 8th dec maybe thats last we see of him