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Anyone know anthing about Lipomyelomeningocele

4 replies

mumsyof4 · 17/03/2005 14:31

Hello, my 13 year old son was diagnosed with Lipomylomeningocele and a tethered cord two years ago after waking up one morning to find he was totally incontinant.Its been a wake up call for us all but he is coping brilliantly.He now has a mitroffanof stoma to allow him to catheterize and takes medication to help his bowels,he may need a ACE at a later date.What I was wondering was any info about this condition would be very helpful but also he is going into Kings hospital Weds for a detethering of his spinal cord to stop any further damage to the sensation in his legs.Does anyone know much about this surgery as we have only had a quick phonecall with the surgeon because they are treating it as an emergency and we only found out yesterday.Im surfing but cant seem to find out basics like pain recovery times and lengh of operation times.Any help would be gratefull Thanks

OP posts:
nnosam · 17/03/2005 14:33

have no idea what you are on about but have just found this for you hope it helps.

nnosam · 17/03/2005 14:35

i ment have no idea what lipomylomeninggocele is... sorry if it read wrong........

mfh · 17/03/2005 14:36

or another one . Quite far down the page it talks about length of the operation.
Please let us know how things go.

mumsyof4 · 17/03/2005 14:38

Thanks will go take a look

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