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follow up on dd seeing neuro today: not happy

6 replies

trace2 · 07/11/2008 15:54

i want to see an other neuro how do i go about seeing one? today he says she may be having faint dosfor up to 14hours

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needmorecoffee · 07/11/2008 16:00

ask your GP for a refferal to a differet one and explain your reasons. you are allowed a second opinion. Your current neuro sounds likea twat.

trace2 · 07/11/2008 16:12

thanks nmc i am so upset he carnt get bloody reflux of of his head he mentioned dumping symdron as well if she had it would be cos he wanted her having the bloody op and to top it off a pead just rang us from the swob he did on her tummy shes got a bad infection called Staphylococcus where it can be mrsa or even cause meningitus we know it wasnt over granulation but agin they didnt lisern

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needmorecoffee · 07/11/2008 16:26

your poor dd. How does the hole look now? Does it hurt her at all?
I assume they've talked about Sandifers syndrome but to my mind she is either dystonic posturing or having seizures.
Could you get a referal to GOS?

trace2 · 07/11/2008 16:30

her site looks uuukkuck! its got a massive over growth round it and its making her itch.
weare along way from london but will to do it, he knows he dont know what it is thats whats up with him, every one whos seen what she does is shocked its not nice and upseting shes carnt cry through them

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feelingbitbetter · 07/11/2008 18:19

I did wonder if this would happen from what you've said on previous threads - he sounds like a prize gimp.
Can Paed who seems to be supporting the seizure theory not ask for another opinion? Do they talk to each other at all ? As I read it, it was paed who asked for the appt wasn't it?
So sorry she has an infection again. Poor DD and you.
Did you get stroppy at all? I think I would have from the circles you've been going around in, and probably asked neuro to refer to another neuro for second opinion . My temper gets the better of me sometimes and I am on your behalf x

trace2 · 07/11/2008 19:16

sorry had to pick abbs up from hospital

yes ive rang the pead who requessed us see him hes not in till wed next week, i broke down on phone to his sec i want him to saylike he did to us its neuro he thinks? and yes i am asking if we can have a second oppion when he phones me. yes i did get storry and once again i said hes not normal and other have said the same but he dont listen , the only problen we have about going some where else is i think after sheffiewld childrens i think it needs to be london, and we have to wait for an epidod to happen

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