WANT TO THANK ALL FOR THERE HELP THOUGHT BEST START MY OWN THREAD

[bubblagirl]

i today have contacted a private SALT due to no help from our nhs SALT and 21st of this month i will be seeing private SALT for my ds

it is going to be slightly costly but we have agreed we will do once a month to give us a chance of being able to afford from his dla money

she is also going to give me tasks to do at home hooray finally would of thought nhs SALT would have been able to do that

anyway nhs SALT will be seeing him on 20th at pre school even though we agreed she'd see him outside due to the difference in his speech etc at school but obviously she was scheduled to go in that day already as he was supposed to be assessed end of sept never heard from her

im so annoyed its had to come to this as i was told she wopuld be supporting us and havent had any help in yr half still happy that he will fianlly have some help once a month better than nothing

i am going to tell his pediatrician on fri as he has his 3 half yr check and hoping she will get onto nhs SALT and say she's not happy with how its been going etc

well just anted to say thanks to all that have given me ongoing support and advise and help in finding private SALT im glad i can rely on youall you know who you all are xx

anted= wanted lol

hope you find the private SALT visit very helpful.

yes she wanted them to be every step of the way with me and so far thinks they have been so doubt she will be happy to hear that we have been left with absolutely no help at all from SALT only tasks to get him to talk in pre school no help[ for me to do things at home feels like such a wasted yr and half

but at least now once a month we can guarantee some one to one help with private SALT and i will be given things to do at home we had good conversation she doesnt base herself on i hr session she will stay for as long as it takes to go through what we have to do

so she sounds good hopefully bubblaboy will come along better once i ahve help to help him and he actually receives some from SALT

just a shame it couldnt happen sooner with nhs SALT thank god for dla money

and for the advise on where to find private SALT i would never have known where to start so thank you

it is mad but i had to do something for my ds a yr and half is along time doing nothing its my babies life im messing with continuing doing nothing

obviously not that i haven't tried to do things just fallen flat on my face alot of the time

i just needed people with knowledge to push me in right direction where better than on here specially as you have all been there for me for well over a yr now so cant thank you enough

its a shame we all have to go through this though and more help isnt offered to our dc that are really in need

Bubbla, hope it goes well.
Remember,you have to show the need in order for services to improve (I'm a salt) spo please write to chief exec. of your Trust expressing your anger, and go to local SNAPO office and do the same.

Don't just feel angry and not be heard!

thank you moondog its all so new to me ds dx in may left alone to try and sort things out myself only getting advise on here on what steps to take next so kind of in the dark on everythintg unsure of what people are telling me such as SALT etc trusting there advise to find im being fobbed off then not knowing what to do next

people in rl fail to tell you and to guide you guess as his young there not overly bothered but early intervention is the best we all know that

thank god for mumsnet to put me in right direction and help me on what steps to take am so grateful to all of you its a lonely p[lace with a child with ASD and not knowing what to do next to ensure he gets all the help needed

UPDATE we had call from ed people today and he has been awarded time with specialist teacher not sure how many hours as yet but its been accepted need to wait to hear from specialist teacher to let me know

yes a start in right direction i was so scared as lady i know her non verbal ASD ds was given no one to one allocated time she is now appealing

as i say not sure how much time will be given but at least he will receive halp and from a specialist teacher even better

just wanted to let you know i got my carers allowance today so over the moon xx

It gets better!!!

thanks guys im so happy dp works so hard and lives in overdraft bless him so now its a burden off him i can help and have money to call my own

treated him to some nice jeans and designer top and put 100 pound in the bag as a suprise for him tonight to say thank you for all he does for me bless him

i know he wont want the money but he deserves it xx

oh speech therapist phoned today and would like to see ds outside of pre school also so is assessing him at clinic on 22 i think so cancelled private for now as it will be same assessment 2 days running but if dont agree with nhs SALT then will phone private SALT back for 2nd opinion seems silly spening 100 ;pound on the tue for same assessment on wed for free