hi we home from hospital!

[trace2]

and i want to thank you all for the good wishers chloes still sore and am finding it hard getting used to feeding her with tube and shes still in some pain but we home and shes on the mend again thank you all.

Good to hear. Am belated in sending my well wishes but have been keeping my eye on the original thread. Glad she's going in the right direction

Glad you are home and chloes recovering.

Hope she recovers quickly, glad that you are home

That's great she's on the mend.

glad she is home safe and sound

great you are all home. I want day by day updates you know, for when dd gets her tube plus any useful tips.
No pressure

thank you all riven i will tbh am finding it hard the feeding dh is best at it, the wound is weeping and we doing bowls feeds at moment waiting for a pump for night feeds.dd is still only on 4 50ml of milk its hard on her taking it but its more than shes ever took

is she still eating orally? Is it normal for the wound to weep?

Glad she's home

no shewont take anything its like we said her tummy needs to stetch! and our nurse came today she says its normal for a bit to weep but its running her vest and pjs are wet through, hers is held in with a ballon am scared the ballon as burt and we not got a spare so if it drops out we not been lernt yet how to fill up or change untill friday as so scared we made wrong decision

we were told if it falls out you got an hour to get to the hozzie or the hole starts to close up.

yes we been told same but its not out yet and am scared it may fall out in nigt

have you wiggled it to see if its still firmly in there. I imagine if the balloon has burst the tube would actually fall right out.
I'm petrified of all this and frightenned dd will forget how to eat by mouth.

yes just donea feed and loads seeped out so looks likesheas some sort of leak if no better soon going to ring ward

sounds like a good idea. Good luck.

back to hospital now

Glad you're home and good luck back at the hospital! Was it the button she got?
Ds goes in for his on the 5th of november. i'll probably have lots of questions!

Pleased she's home.

Great news. Hope you get used to things soon.

Thinking of you too riven, your turn next and I know you'll be anxious about it.

Glad you are home x

well been back in hospital we thought it was the ballon but that would have been to easy for us the hole is got to big so every thing we put in is seeping out, so now we have to knock the feeds right down over night to let the hole try and heal and hope itdont get septic or her acid come out over night if it does we need to go striaght in what a start iv just had enough of my baby beeing ill i just want it out

glad to hear she's home and doing ok considering hugs to you both xx

aw trace. Sorry to read of complications. Wishing you all the best x (we go next week to see the surgeon about dd's g tube. Feel even more wary of it now )