Feeling really stressed out with all the medical stuff, I hate having to hurt my DD [sad]

[used2bthin]

And the hospital lost her last blood spots, two days of pricking her and collecting the blood and now I have to repeat it tommorrw and thursday to take in friday when she has her early morning blood test at the hospital. Which will be awful because her veins have become so hard to get due to being used so much. And I'm stressed out because I have got huge decisions to make about her surgery and it seems opinion varies according to which professional I speak to. No one can really help me I ust needed to rant I think!

Poor you and poor dd. Thinking of you.

We usually have probs with DD's veins too. You deserve a good rant - it's bloody hard work sometimes

Thanks both of you its really getting to me atm, it feels so relentless. I also went to visit a friend with a new baby today. Which was lovely but after I left I couldn't help but feel all sad because he is having the start to life that my dd never had, she was having blood tests constantly, MRI, horrible dye type test where they went up through her urethra with no pain relief and I feel like I should have protected her really. But I know logically it had to be done. I hope I won't feel like that with every friend who has a baby, it isn't that I don't want them to have a problem free time at all, I am so glad my friend didn't go through hell like we did it just reminded me about when dd was that age I think.

Those feelings are pretty natural I think - most of the time we just get on with it but now and then it's hard not to think about what might have been and should have been.

I think it gets a bit easier as time goes on but sometimes I even feel jealous about other kids' special needs that aren't as severe as DD's.

I was told that parents of SN kids never really stop the grieving process and I guess this is part of that.

Yes I am sure you are right. I cannot imagine having another baby because it would mean going back to THAT part of the hospital and having all the same things to remind me. I think maybe I coped a bit too well at the time. Oh and I did DLA forms yesterday and finished it off today so I suppose that hasn't helped my mood much.

Just sent our DLA forms off on Fri - ugh. Spend your life try to be positive and then you have to focus on all the negatives - think of something lovely you can get DD when they approve the forms...nothing like a bit of shopping therapy

Hi used2bthin,

Sorry you have been going through all this. I hate having to watch my ds go through blood and pin prick tests and help pin him down (virtually) for them.

You just want to have them do it all to you instead, don't you.

Was v v cross last time ds had them as the nurse more or less told him off for wriggling and 'making a fuss'. I feel even worse that I didn't tell her she was out of order(was too busy trying not to cry myself!). Grrr

Hopefully, you'll get an expert blood taker who will have it over and done with quickley.

Have filled in a few dla forms too in my time. Luckily, they have now cottoned on to the fact that dh's condition is not likely to change so haven't had to do them recently. Each year, I kicked myself for not photocopying it the time before!

Have strength and lots of treats for you both. Will be thinking of you.

ps. off on hols next wk. Will email when back. xx

Good plan mintpattie, oh hope it all goes through ok again, we were "lucky" last time apparently as dd is young to get the highest element. Its all worry isn't it? Better get some sleep I suppose, be ready for bloods tomorrow! I am hopefully getting a rare night out friday so something to look forward to provided all goes well. Thanks for listening. It is weird about the positive thing with DLA btw I agree, its like writing the opposite to what you usually say about your childs difficulties.

Sorry desperatehousewife I took so long to post I missed yours. How are you? I hate it when they make out dd is over reacting too, they kind of did that recently in her consultants clinic. It wasn't a bad remark I don't think but enough to make me want to say you get held down by strangers who are hurting you for apparently no reason then! Ugh its horrible. The right blood taker does make a huge difference though. And yes I wish it was me! Last time the doctor oked "can I have that big vein I can see on your hand instead" and I said I wish!

Anyway have a brilliant holiday and speak soon xx

joked that should have been.