Safety adaptations for DS delayed due to long term staff sickness, any advice welcome

[1995SENNDMUM]

Hello all, hoping someone can suggest a solution for me.
I ve been fighting for a safety bed for almost a year for my son and after numerous appointments with LD nurses and OTs they finally agreed in May that a safety bed was an appropriate deprivation of liberty.

Had the appointment with the bed rep and OT in June to be told one more panel and it ll be ordered, the OT in question called in sick the next working day and has been off for 4 weeks now.

It seems although that appointment existed on DS's record the notes don't seem to and it sounds like they re in the OTs possession at their home handwritten in a notebook that no one's been able to retrieve.

Without those notes the bed decision can't go to panel, and I m a bit uncomfortable now that my son's notes are indefinitely at an OTs home and disgruntled that the bed company has 4-6 week waits for appointments if they have to do a second visit if they even allow it.

So basically I m after advice on how do I get this solved? Tried speaking to a manager this morning and for the 3rd time been told they d speak to a clinical lead and call back, the same promise I d had twice from the receptionists that never happened.

If the manager is repeatedly ignoring you, I would make a complaint.

I agree with other reply - time for a formal complaint to the head of service that notes from appointments and meetings are missing due to being in the possession of the OT at their home with no concurrent entries in his records available to other staff in the department and, as a result, your son can’t receive the equipment he is assessed as needing.

Thanks both, threatened another complaint and one of the clinical heads of the service have booked an appointment in next week with me to confirm some info to get it ordered.
They also acknowledged that I was well aware that it's not appropriate that the notes have been inaccessible for this long, so if the appointment doesn't solve it as promised I ll see if there's anything worth saying to their data protection lead.

I'd leave data protection out - it's not the problem and I'm not sure it is even a problem (many orgs have WFH agreements). The issue is the failure to provide the service and the length of the delay - focus on that if you do get to complaint level