When is DD1 classed as incontinent rather than just "still in nappies"?

[cktwo]

I just wondered this because someone asked me yesterday if I was getting her nappies on prescription (answer - no).

DD1 is 3 and has various developmental delays (no-dx) so I cannot potty train yet. She cannot talk or sign at present so I'm unsure when we can start toilet training too. Will I eventually be able to get help buying her nappies?

We started getting nappies when DD2 was 4 - the HV came round and did a continence assessment and as her lack of continence was due to her delays/medical reasons we got approved. They provide 90 nappies a month which we collect from the health centre. We get Pampers, no choice as to what we get.

We still buy the odd pack of nappies to top up but it does save us a lot of money.

Your DD may surprise you - it's only recently but DD2 has started using the potty (very occasionally, certainly not consistently) and she can't talk. She can't take her own trousers off or climb on the loo, but if we give her some nappy free time at the end of the day she will go and sit on the potty and has done the odd wee on it. We even caught a poo the other day!! (Sorry but I was so excited )

I think we're still a long way from being out of nappies but it's nice to see her getting some awareness of needing to wee.

it's 7 here for freebies

ds3 just started training (he's 5 soon) and we're ding well, never expected to get here tbh- don't give up

We got nappies (Libero) from age 4. 4 per day. Dd is now 7.

We got 4 nappies per day from age 4yrs. Lately, I have noticed the odd reference to 'pads' rather then 'nappies' creeping into reports about my ds (he is 5yrs old) so perhaps the use of the word 'nappies' is non-PC for older children/adults (but this is speculation).

Thank you all for responses, it's interesting how it varies by region. I'll make enquiries after half-term.

I've started to make gentle appraoches with regards to the potty. It's around a bathtime when she's got no pants on. I'm planning to let her have a bit of nappy-off time whenthe weather is warmer to see what happens, but to be honest, I feel a little overwhelmed. So any advice would be good!!

MannyMoeAndJack you are iright it is pads for older young people i suppose when you are 13 you would rther not have people know you wear a nappie.

my firends son has just got help with nappies he has just turned 4

we had them from 3 years and up to 6 per day. At the time we could choose the brand, but then they changed to some cheap 'babystar' ones and they weren't very good so now I buy them myself.
Definitely worth asking though.

most places are going to 5 for freebies now due to the number of NT children who are still not reliably dry at approaching 4...

We got Pampers from age 3, up to 6 a day.

it has taken me 16 months to get pullups from nhs for ds with cerebral palsy, doubly incontinent and self catheterises aged 7. But ystdy, I heard i had won and they are going to give them to us!!!

Hollow victory tho really

I'm still struggling to get nhs pads for ds who is 8.5 and too big for size 6 nappies. He is partly reliable by day so only needs pads at night so isn't classed as incontinent. Stupid system!!

Magso - i totally sympathise with you,its a nightmare. I have TONS of pads here that I don't need, where are you? would you like them? it would be a total pleasure to give them to you.

Am in West Sussex Riven, they have been truly horrific, and yep, the size thing is another nitemare.

Another question re: this topic. Who do I ask about getting free pads? Is it GP, OT or HV????

My HV gave me the number of the local continence nurse, who later came round to measure up ds and write a prescription out for '4 units per day'.

sounds like you had it quite simple Manny, that's great.

We were told that as we 'not trying to potty train' ds,we were not entitled! (err he's doubly incontinent due to cerebral palsy) It took 15 months for me to 'win'.

Yes,cktwo, HV should be first port of call, other wise ring local hosp and ask for paed incontinence specialist nurse.

MABS, their logic is appalling! I'm glad they didn't suggest that to me. The only slight complaint I made about our service was to do with the number of nappies allocated in a 24hr period. I did write to my ds's paed to beg ask for more but it didn't make any difference. However, reading the above posts, it seems that some families are given only 3 'units' per day, so I should be grateful for what we get!

We got Libero nappies after DS1 turned 3 1/2 and we get however many we need, currently 5 a day. That may have to go up, though, now he's bigger, as we used to put him in Pampers to go out, as they were more discreet, but he's growing out of them.

This is yet another example of how service delivery is so variable in the UK. Why do some families receive 3 nappies per day in one area, other families 4 nappies per day in another area and still other families as many nappies as they need?! Wouldn't it be easier, cheaper and fairer to have one, centrally administered, system?

totally agree Mannymoe, you are so right