Tuberous Sclerosis diagnosis in 4 month old

[Littlesprout4]

Hi, my daughter has recently been diagnosed with TS, started off as infantile spasms, really looking for positive stories please, any parents of children who were diagnosed when they were a baby, how did you find their development? Struggling to not stress about it too much as I know babies develop at different rates anyway but just want to hear parents journey with this side of things

Hi, my now 20 months old son is TSC2, also diagnosed at 4 months old due to IS. Even though there were some delays, he's developing neuro typically - early intervention is key if you have access to it. If you're on fb there's a TS Mommie's group that you should join, it's very active and informative plus you'll most likely get better support over there. Feel free to message me here if you need to talk, even if it looks like it right now you're not alone, there's support and hope for you and your LO ❤️