ive had enough of peads now saying dd as reflux again

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as most who now us or about us still waiting for dx well today a pead says she as reflux once again going to put camra down and up her bum to take bits of her to test and again having another ph probe! and they think her sezures are reflux too.

shes been brought out of sezures with meds and theres loads seen the sezures at hospital too its like we back to start again, i wish it was reflux but we now its not why wont they lisern! also while we was in our nurse said shes just having a twich but they didnt lisren again.

sorry am just so fed up why can they not just say we dont know what up with her instread of keep thinking its some thing else

ok been to neuro today ive got missed up (severs me right not liserning) they think dd as reflux as well as , just as we thought, still not dx yet but now trying her on co-beneldopa (its for parkinsons ) shes not got that, but they hoping it sorts out her postures, tbh i think like i said befor they have no idea whats up wi dd

Good luck with the new meds

oh good at least they aren't trying to fob you off saying all the probs are reflux. I hope that the meds help her.