Hello, just posting to see if anyone else is going through anything similar?
would be great to talk 🙂
my 11 year old daughter was diagnosed with end stage renal failure in February this year after feeling unwell for a few months, it was a total shock and after spending the past few months in and out of Alder Hey, we have just started dialysis at home via a PD catheter. Absolutely bricking it to now be responsible for her dialysis! But the best solution all round to attempt to live any kind of “normal” life until she has a transplant.