told you last week dd finally got meds for the sezurs, well

[TinselTrace2]

only after a few hours on them she was screaming like she was in pain, no idea if was teething so tried to continue with them, but after 4 days we was tea\ring our hair out, so stopped them . but then dd started like having loads of little sezurs and very irtable so phoned our eperlepsy nures couldnt get hold of her so phoned our neoro sec to see what they said and what do we do next, and said good job we stopped them.

i just feel like coz they not given dd a dx yet we have no one to turn too where do we go from here?

oh trace ((hugs)) it must be so frustrating for you. Are these the first meds she's been on? have they not given you any alternative now that they've said it's a good thing you've stopped the meds?

thinking of you xx

hi wannbe first meds for sezures, but on lots other just want to have a names for her probs

sorry you had such a bad experience with the seizure meds. When is she next due to see the neuro?

not till jan but i phoned him so weather he wants to see her befor but i dout it shes going back in hospital in jan 4 48 eeg again

so is she not on any med at all for the ceasures?

no not they took her of it but they dont know weather there sezures but they do know she as some kind of moverment disorder

but the peads at out local hospital says thees sezures they have brought her out off them wi sezures meds shes had, dizapam (dont suit her) larazapam and peralidide