Sorry if someone else has already posted this but I haven't seen and in any case don't think it hurts to post it again.
The Every Disabled Child Matters campaign is asking for parents of children with disabilities to email their MP asking them to support a bill making it law for families to be entitled to respite care/short breaks.
It is really easy to do. Literally takes a few minutes as they have prepared it all for you.
Follow this link www.edcm.org.uk/righttobreaks where there is also much more info about the campaign.