I am very interested in trying this and was just wandering which enzyme people use?
My DS is 4.5 and has been CF for around a year now, we had his urine tested at Sunderland and it came back as nothing unusual for Gluten and an unclear result for Casein. We put this down to the fact that we had him on soya milk for over 6 months, although we did go back to cows milk for a few weeks before the test (which was a nightmare).
Our main concern with DS is his bowel movements, he has always had very loose stools and no matter what we have tried to remedy this nothing has worked.
We have seen a dietician who suggested we removed all cow protein from his diet, which we have done. Although his bowel movements are slightly better, it still isnt right.
Our paed has had him RAST tested along with all sorts of other blood tests, all of which come back normal.
He has no allegies and the only answer we have so far is a 'perhaps' intolerence to cow protein, as told to us by his dietician. This is probably right as we can tell if he has managed to 'borrow' someones food at school which contains milk as his nappy always gives him away.
However like I said, even removing the cow protein hasn't helped his movements as much as we would like.
That is why we would like to try out these enzymes, as if they worked it would help us so much with toilet training, smearing, swimming, widening his very limited diet and I just know it would make him feel so much more comfortable.
I know there are a couple of good sites listed here, but I am struggling to get my head around them, so if anyone could perhaps tell me what products they use and why and maybe what results they have seen so far, I would be eternally grateful.