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Here are some suggested organisations that offer expert advice on special needs.

Schuylers (pronounced sky-lar) monster

4 replies

misdee · 19/05/2007 21:10

here

I have been reading this blog for a while. Her father has a book coming out next year about his daughter and her monster, which is Bilateral Perisylvian Polymicrogyria (also called Congenital Bilateral Perisylvian Syndrome).

Scuyler uses a device to talk. The writing is wonderful, and its a real insight into their lives.

OP posts:
chonky · 19/05/2007 22:39

Thanks for that misdee. DD's neurologist thought that her scan showed possible polymicrogyria. I'll have a read.

misdee · 20/05/2007 08:11

glad it may be of interest to you chonky. how old is dd?

OP posts:
misdee · 20/05/2007 20:03

. for any other people.

OP posts:
chonky · 20/05/2007 22:28

dd's 3 misdee

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