Active discussions

Please or to access all these features

Talk
SN children

Here are some suggested organisations that offer expert advice on special needs.

Original poster

48 xxyy syndrome

3 replies

throneofgames · 27/01/2017 15:59

My beautiful 20 month old baby boy has just been diagnosed with xxyy and I can't cope. I can't take it in. It's so fucking unfair. He'll never have children. Probably won't live independently. What a hateful world we live in.

OP posts:
Heytheredelilah1987 · 28/01/2017 19:33

I hope you're OK throne. I don't know anything about that syndrome. Hugs to you. You'll cope. It'll take adjustment xx

Ginandelderflower · 29/01/2017 09:49

Throne that is so hard. What a horrible shock for you. One day at a time
Brew Flowers

Megatherium · 30/01/2017 12:09

Try contacting Unique, which is a support group for families of children with rare chromosome disorders - www.rarechromo.co.uk/html/home.asp. , and Genetic Disorders UK.

New posts on this thread. Refresh page
Please create an account

To comment on this thread you need to create a Mumsnet account.

Join Mumsnet Log In

This thread is closed and is no longer accepting replies. Click here to start a new thread.