Wiedemann Steiner syndrome

[helen1164]

Yesterday our daughter was diagnosed with WWS wiedemann steiner syndrome- just wondered if there were any parents out there with children who have same syndrome. Would love to chat .

Hi there - I didn't want to leave your message unanswered. I think there may be someone at my DD's new school (one of the mums that I chatted to before we accepted her place) whose DS has the same syndrome. I will PM you.

Thanks for replying. That would be great.

hi my daughter has wiedemann steiner syndrome. i have sent you a PM and would be happy to talk

Hay. Me( 50yr) and my 20yr old daughter were both diagnosed with WSS in 2018, she inhereted it from me. You're welcome to talk!