1p36 deletion syndrome - anyone else?

[southmummy2011]

Hi all - my 2 yo son has just been diagnosed with 1p36 deletion syndrome. It has all been a bit of a shock although we knew his massive development delay was an issue. It's mainly communication with ds.
Anyway does anyone else's little ones have 1p36 - any support groups out there? How are your little ones doing?
Xxx

Hi, not the same one but my DD has a chromosome abnormality. Happy to be of any help if I can.

Also have you heard of Unique, the rare chromosome charity? They may be able to help you further.

Feel free to keep talking to me, either on thread or PM.

My friends DD has 1P36 tho i dont believe she is am MNer i know there is a fab support group on facebook that she uses ill point this thread out to her.

Hi, I realise this post is very old. I'm new here. My son is 9 and has 1p36 deletion x